Jayne
In Arkansas, the Newborn genetics is within the Division of Health. Quarterly, we match results to birth certificate data.
HIPPA is not a concern because this constitutes public health surveillance and investigation.
The Health Insurance Portability and Accountability Act (HIPAA) addresses state regulatory and public health reporting by stating:
b) Public health
Nothing in this part shall be construed to invalidate or limit the authority, power, or procedures established under any law providing for the reporting of disease or injury, child abuse, birth, or death, public health surveillance, or public health investigation or intervention.
Further, 45 CFR 164.512 Uses and disclosures for which consent, an authorization, or opportunity to agree or object is not required states that "A covered entity may disclose protected health information for the public health activities and purposes described in this paragraph to: (i) A public health authority that is authorized by law to collect or receive such information for the purpose of preventing or controlling disease ...including the reporting of disease... and the conduct of public health surveillance..."
John Senner
Arkansas Health Statistics
-----Original Message-----
From: Leslie Himstedt
Sent: Monday, July 31, 2006 10:53 AM
To: John Senner
Subject: FW: statistical data collection
Hi John. Ed Just said you might be able to comment on this. I told Jayne Brown we used SAS but I'm not sure in what capacity. Thanks.
Leslie Himstedt
Newborn Screening Supervisor.
-----Original Message-----
From: Communication for the Heartland Regional Genetics Group
[mailto:[log in to unmask]]On Behalf Of Jayne Brown
Sent: Monday, July 31, 2006 10:35 AM
To:
Subject: Re: statistical data collection
Thank you everyone for your input. Most everyone has SAS. Does it meet
the needs? Are you satisfied with it? I'm just trying to evaluate what
we have and see what is being used out there and what is most effective.
Are the genetics data linked to the state health dept in other states?
ND does not have the linkage, nor is the genetics department a part of
the Health or Human Services Department. So the next question to ask
then, should we be linking that data in the future, and what about HIPAA?
Thank you for your input, it's appreciated. Jayne
Sharmini Rogers wrote:
>Missouri uses SAS too.
>
>
>Dr. Sharmini V. Rogers, MBBS, MPH, Chief
>Bureau of Genetics and Healthy Childhood
>Section for Healthy Families and Youth
>Division of Community and Public Health
>Missouri Department of Health and Senior Services
>930 Wildwood Drive
>Jefferson City MO 65109
>E-mail: [log in to unmask]
>Tel: 573-751-6214
>
>CONFIDENTIALITY STATEMENT
>This electronic communication is from the Missouri Department of Health and Senior Services and is confidential, privileged and intended only for the use of the recipient named above. If you are not the intended recipient or the employee or agent responsible for delivering this information to the intended recipient, unauthorized disclosure, copying, distribution or use of the contents of this transmission is strictly prohibited. If you have received this message in error, please notify the sender immediately at the following email address [log in to unmask] . Thank you
>
>
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>
>>>>[log in to unmask] 7/31/2006 8:45 AM >>>
>>>>
>>>>
>Hi everyone,
>I'm evaluating a SPSS Statistical Analysis Program for our office and am
>wondering what everyone else uses for data collection for their
>organization. Thank you, Jayne
>
>
>
--
*Jayne Brown*
Human Service Information Coordinator
Division of Medical Genetics
UND School of Medicine & Health Services
PO Box 9037
Grand Forks, ND 58202-9037
(701) 777-4277
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