________________________________________
From: Puryear, Michele (HRSA) [[log in to unmask]]
Sent: Monday, May 18, 2009 12:23 PM
To: Amy Schwartz; Camille Miller; [log in to unmask]; Cynthia Cameron; Hans Anderssen; Harris, Alaina (HRSA); Janice Bach; John Johnson; John Moeschler; Mulvihill, John J. (HSC); Joyce Hooker; Judith Benkendorf; Katharine Harris; Kenneth Pass; Kerry Silvey; Williamson, Lori L. (HSC); Louis Bartoshesky; Michael Watson; Piero Rinaldo; Rani Singh; Shuger, Jill (HRSA); Sylvia Au; 'Therrell, Bradford L Jr'; ([log in to unmask]); ([log in to unmask]); ([log in to unmask]); Alexander, Duane (NIH/NICHD) [E]; Boyle, Coleen A. (CDC); Dougherty, Denise (AHRQ); Howell, Rodney (NIH/NICHD) [G]; Jana Monaco ([log in to unmask]); Kwaku Ohene-Frempong ([log in to unmask]); Michael R Skeels; Ned Calonge; Rodney Howell; Tracy Trotter ([log in to unmask]); Alan Fleischman ; Barbara Burton; Bennett Lavenstein; Kus, Christopher A.; David Louder; Hausman, Ethan D (FDA); Sharon Terry; [log in to unmask]; Thomas Musci ([log in to unmask])
Cc: Groft, Stephen (NIH/OD) [E]
Subject: FW: Orphan Drugs: Improviing the Health of Every Patient" at US Chamber of Commerce on June 4
Please see notification of the following meeting.
__________________________________
Michele A. Lloyd-Puryear, M.D., Ph.D.
Chief, Genetic Services Branch
Division of Services for Children with Special Health Needs
Maternal and Child Health Bureau
5600 Fishers Lane. Rm 18-A-19
Rockville, MD 20857
301-480-1312-fax
301-443-1080-phone
________________________________
From: Masukawa, Joff [mailto:[log in to unmask]]
Sent: Monday, May 18, 2009 10:45 AM
To: Puryear, Michele (HRSA)
Subject: Orphan Drugs: Improviing the Health of Every Patient" at US Chamber of Commerce on June 4
Hi Michele!
Thanks to your suggestion, Barry Thompson will serve on a panel at this important event on June 4. The program is designed to highlight the benefits of the Orphan Drug Act and the need to continue incentives supporting research and development in light of legislation that would establish a regulatory pathway to approve follow-on biologics.
Would you please take a moment to invite any folks you feel would benefit from the program, particularly policymakers, influencers and other key stakeholders? You can see the attached agenda for program. This link provides complimentary registration:
http://ncf.uschamber.com/orphan_drugs/
If your travel plans change, please do attend – we’d love to have you there.
Thanks,
Joff Masukawa
Senior Director, Government Relations and Public Policy
Shire
725 Chesterbrook Blvd
Wayne, PA 19087
Office: 484-595-7450
Mobile: 213-280-6744
Fax: 866-688-1674
[log in to unmask]<mailto:[log in to unmask]>
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