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Communication for the Heartland Regional Genetics Group

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From:
"Dean, Lori" <[log in to unmask]>
Reply To:
Communication for the Heartland Regional Genetics Group <[log in to unmask]>
Date:
Fri, 29 Apr 2011 16:49:33 -0500
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FYI for Heartland Collaborative....  Contact your local genetic counselor or me if you wish to attend this webinar.



Lori Williamson Dean, MS, CGC, LGC
Program Coordinator, Heartland Genetics & NBS Collaborative
Assistant Professor, Department of Genetic Counseling
University of Arkansas for the Medical Sciences

http://www.heartlandcollaborative.org
http://www.uams.edu/chrp/genetics

Phone: 405-819-2135
________________________________________
From: Executive Office [[log in to unmask]]
Sent: Friday, April 29, 2011 4:02 PM
To: Dean, Lori
Subject: Free Webinar: The Fate of the Newborn Screening Bloodspot - A Valuable Resource or a Looming Liability

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Free Webinar: The Fate of the Newborn Screening Bloodspot - A Valuable Resource or a Looming Liability
Save the Date: Wednesday, May 25, 2011. 12:00 - 1:00 CST

The NSGC Education Committee is excited to present our 2nd webinar topic of the 2011 series. Our panel of experts will examine the newborn screening blood spot storage controversy. They will discuss the history of blood spot storage and recent legal/legislative issues surrounding storage and use, as well as the ethical aspects that have created much debate among citizens and lawmakers alike. This webinar will also address how these issues may extend beyond NBS to other types of specimen storage. Attendees will gain excellent background knowledge regarding the pending NSGC Position Statement about this issue. You will also have opportunities to ask questions!

Presenters Include:

 *   Brad Therrell, Ph.D. DirectorNational Newborn Screening and Genetics Resource Center
 *   Amy Gaviglio, M.S., CGCShort Term Follow-Up Supervisor, Minnesota Department of Health Newborn Screening Program
 *   Wyane Grody, M.D., Ph.D.Professor, Divisions of Medical Genetics and Molecular Pathology, Departments of Path. & Lab. Medicine, Pediatrics, and Human Genetics UCLA School of Medicine

Webinar Objectives:

1)    Describe the importance of newborn screening and the history of blood spot retention.

2)    Discuss the lawsuits that have occurred regarding NBS blood spot storage

3)    Understand the purpose of blood spot retention by the public health laboratories.

4)    Assess the ethical dilemmas regarding storage by the newborn screening laboratories.



To register, please go to:

2011 Webinar Save the Dates:
All are held on Wednesdays, 12:00- 1:00 CST.

1.       July 27 - A Lifelong Relationship: Genetic Counseling for Chronic Disease
2.       September 28 - Topic TBD
3.       November 30 - Topic TBD

If you have any questions about the webinar series please feel free to contact NSGC Webinar Subcommittee members (Renee Chard<mailto:[log in to unmask]> , Carrie Blout<mailto:[log in to unmask]>, Christina Zaleski<mailto:[log in to unmask]>).





NSGC Executive Office
National Society of Genetic Counselors




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