Communication for the Heartland Regional Genetics Group


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Communication for the Heartland Regional Genetics Group <[log in to unmask]>
Tue, 3 May 2011 08:38:05 -0500
Communication for the Heartland Regional Genetics Group <[log in to unmask]>
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"Dean, Lori" <[log in to unmask]>
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Heartland colleagues:

When I sent this message out the first time, it was unclear if non-NSGC members could join the webinar.  I inquired (as did others), and NSGC has now opened up the webinar to all. :)  I know that there were several who contacted me with interest.  Everyone can join from their own computer.  In fact, NSGC is interested to know who else joined (other than GCs) as it may determine future webinar topics.

The new info is below.


Lori Williamson Dean, MS, CGC, LGC
Program Coordinator, Heartland Genetics & NBS Collaborative
Assistant Professor, Department of Genetic Counseling
University of Arkansas for the Medical Sciences


Phone: 405-819-2135
From: NSGC Executive Office [[log in to unmask]]
Sent: Monday, May 02, 2011 10:33 AM
To: Dean, Lori
Subject: Free Webinar: The Fate of Newborn Screening Bloodspot - A Valuable Resource or a Looming Liability

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Free Webinar: The Fate of the Newborn Screening Bloodspot - A Valuable Resource or a Looming Liability

Save the Date: Wednesday, May 25, 2011. 12:00 - 1:00 CST

The NSGC Education Committee is excited to present our 2 nd webinar topic of the 2011 series. Our panel of experts will examine the newborn screening blood spot storage controversy. They will discuss the history of blood spot storage and recent legal/legislative issues surrounding storage and use, as well as the ethical aspects that have created much debate among citizens and lawmakers alike. This webinar will also address how these issues may extend beyond NBS to other types of specimen storage . Attendees will gain excellent background knowledge regarding the pending NSGC Position Statement about this issue. You will also have opportunities to ask questions!

Presenters Include:

 *   Brad Therrell, Ph.D. Director National Newborn Screening and Genetics Resource Center
 *   Amy Gaviglio, M.S., CGC Short Term Follow-Up Supervisor, Minnesota Department of Health Newborn Screening Program
 *   Wyane Grody, M.D., Ph.D . Professor, Divisions of Medical Genetics and Molecular Pathology, Departments of Path. & Lab. Medicine, Pediatrics, and Human Genetics UCLA School of Medicine

Webinar Objectives :

1) Describe the importance of newborn screening and the history of blood spot retention.

2) Discuss the lawsuits that have occurred regarding NBS blood spot storage

3) Understand the purpose of blood spot retention by the public health laboratories.

4) Assess the ethical dilemmas regarding storage by the newborn screening laboratories.

To register, please go to: https://www1.gotomeeting.com/register/207264728 <http://r20.rs6.net/tn.jsp?llr=z9bqx9bab&et=1105372424672&s=6851&e=0013czIOwHirhYl_M208pUu6lKwipglUpvTCTxj2CvmPqFzWMo2rpKkahSgWm_oaEP4FWLd-QExRCVd9PAOwtSu5pAGRIlyim12ZabxfywGWjpnJKxZINAOIfjowy8441BfLYnI9SpnI8SONNn4WWQBNw==>

2011 Webinar Save the Dates:
All are held on Wednesdays, 12:00- 1:00 CST.
1. July 27 - A Lifelong Relationship: Genetic Counseling for Chronic Disease
2. September 28 - Topic TBD
3. November 30 - Topic TBD

If you have any questions about the webinar series please feel free to contact NSGC Webinar Subcommittee members ( Renee Chard <mailto:[log in to unmask]>  , Carrie Blout <mailto:[log in to unmask]> , Christina Zaleski <mailto:[log in to unmask]> ).

        National Society of Genetic Counselors * 401 North Michigan Avenue * Suite 2200 * Chicago, IL 60611
Phone: 312.321.6834 * Fax: 312.673.6972 * Web: www.nsgc.org<http://r20.rs6.net/tn.jsp?llr=z9bqx9bab&et=1105372424672&s=6851&e=0013czIOwHirhak-51JrkIVNaHXaSNB5tY1dqeQpCRfMFTulUNr4GfxJFBed7u8v-s1nYEjYriqpb_1zh83T5xfUUeWNmgH07CfVlDRyNtJncE=> * E-mail: [log in to unmask]<mailto:[log in to unmask]>
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