Thank you Mark and Julie! I haven't had time to look through them today 
but will be able to by the end of the week. I certainly appreciate 
everyone's feedback! Jayne

Mark A Smith wrote:
>
> Hi Jayne - the responses are from our Clinical Genetics folks here at MMI.
>
> Mark A. Smith, M.S.
> Consumer/Family Coordinator
> Nebraska Center on Disabilities
> Munroe Meyer Institute for Genetics and Rehabilitation
> 985450 Nebraska Medical Center
> Omaha, NE  68198-5450
> (402) 559-5744
> Fax  (402) 559-5737_
> [log in to unmask] <mailto:[log in to unmask]>
> /
> University of Nebraska Medical Center E-mail Confidentiality 
> Disclaimer *****************************//
> The information in this e-mail may be privileged and confidential, 
> intended only for the use of the addressee(s) above.
> Any unauthorized use or disclosure of this information is prohibited. 
> If you have received this e-mail by mistake,
> please delete it and immediately contact the sender./
> ----- Forwarded by Mark A Smith/MMI/UNMC/UNEBR on 08/26/2008 01:39 PM 
> -----
> *Beth Conover/MMI/UNMC/UNEBR*
>
> 08/26/2008 12:22 PM
>
> 	
> To
> 	Mark A Smith/MMI/UNMC/UNEBR@University of Nebraska
> cc
> 	
> Subject
> 	Re: Warren's responseLink 
> <Notes://UNMCNOTES05.UNMC.EDU/86256CB5007EDE85/38D46BF5E8F08834852564B500129B2C/AE4362B0FABFDDE2862574B1004EDEA6> 
>
>
>
>
> 	
>
>
>
> 1. How do area states run their genetics program? (Is it through the
> department of health or are there private genetic health care providers,
> or both?)
>
> A: Nebraska UNMC clinical geneticists provide the service to "greater 
> Nebraska clinics". This is partially supported by state funds and MCHP 
> but greatly subsidized by the genetics service laboratory!
>
> 2. How are your general genetic clinics formed? Do patients see only
> genetics or genetic counselors? Are the clinics multidisciplinary in
> type? If multidisciplinary, please list professionals the patients see.
>
> A:  Both Clinical Geneticists and Genetic Counselors provide the 
> genetic services at out-state clinics-Most clinics also have a Child 
> Psychologist as part of the team-these funds are primarily from UNMC 
> and lab funds.
>
> 3. How do area states manage to fund assessable and available genetic
> clinics with decreasing funding?
>
> A: Subsidy from non-state funds!
>
>
>
> 4. Is there a shortage of geneticists or genetic counselors in your
> state? How does your state address the need for appointments with
> manpower shortages?
>
> A: Yes, and wet try to address this internally but it is difficult to 
> recruit the necessary genetics professionals to provide the service we 
> feel is necessary!
>
>
>
> 5. What is the wait time to see a geneticist? genetic counselor?
>
> A:  We prioritize emergent cases (prenatal, newborns with MCA, etc. 
> but otherwise there is an approximate 2-3 month wait for an appointment.
>
>  
> 6. What is the process of making a genetic appointment?
>
> A: Schedule with a regional coordinator for the next regional clinic 
> or in Omaha, schedule with a "scheduling designee"!  Urgent consults 
> and counseling sessions are generally made directly with the clinical 
> staff.
>
>
>
> 7. What is the average patients seen in a day for geneticists?  How many
> genetic clinics are held in a week? Month?
>
> A:  This is very dependent upon the clinic-In "greater Nebraska 
> clinics", a geneticist and or genetic counselor may see up to 20 
> patients & families!  Our local clinics include, several "birth 
> defects clinics", craniofacial clinics, autism clinics, fetal alcohol 
> clinics, neurodevelopmental clinics, familial cancer clinics and 
> numerous "genetics clinics" The number of patients seen per clinic 
> varies greatly, depending upon the complexity, ranging from 3 to 20 
> per clinic.
>
>
>
> 8. What is the average number of patients seen in a day for genetic
> counselors? How many genetic clinics are held in a week for genetic
> counselors? Month?
>
> A: Varies greatly, depending upon the type of clinic-see answer to #7)
>
>
>
> Beth Conover, MS, C-PNP
> Certified Genetic Counselor
> Coordinator, Nebraska Teratogen Information Service
> Munroe-Meyer Institute, UNMC
> phone: (402) 559-5071
> fax: (402) 559-7662
> **University of Nebraska Medical Center email confidentiality 
> disclaimer****
> The information in this email may be privileged and confidential, 
> intended only for the use of the addressee above.  Any unauthorized 
> use or disclosure of this information is prohibited.  If you have 
> received this email by mistake, please delete it and immediately 
> contact the sender.
>


-- 
*Jayne Brown, LSW*
Human Service Information Coordinator
Division of Medical Genetics
UND School of Medicine & Health Sciences Room 5910
501 N. Columbia Road Stop 9037
Grand Forks, ND 58202-9037
(701) 777-4276
www.medicine.nodak.edu/genetics

"Be kinder than necessary because everyone you meet is fighting some kind of battle." 

**************************************************
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