Jayne - I put my answers after the questions, if anything is unclear let me know!
Robin
************************************
Robin M. Troxell, MS, CGC
Genetic Counselor
University of Missouri Department of Child Health
Mercy St. John's Hospital (Springfield, MO)
(p) 417-820-9839
(f) 417-820-3720
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"This year, or this month, or, more likely, this very day, we have failed to practise ourselves the kind of behaviour we expect from other people."  -- C.S. Lewis --

________________________________

From: Communication for the Heartland Regional Genetics Group on behalf of Jayne Brown
Sent: Tue 26-Feb-08 7:10 PM
To: [log in to unmask]
Subject: 



I am working on a research paper regarding play therapy or therapeutic groups
for children who have been diagnosed with a genetic disorder.  I am curious if
there are such groups throughout the Heartland consortium. Please take some
time to answer these questions and return them to Jayne Brown at
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ATTENTION: This survey has NOT been presented for IRB approval and through
emailing this document your identity is not anonymous. If you would like the
results of this survey, please notify Jayne Brown at the above email address.
Thank you for your time.

Play Therapy is a form of psychotherapy used with children to help them express
or act out their experiences, feelings, and problems by playing with dolls,
toys, and other play material, under the guidance or observation of a
therapist. http://medical-dictionary.thefreedictionary.com <http://medical-dictionary.thefreedictionary.com/> 

1.Are you familiar with any play therapy groups addressing genetic disorders in
children in your area? N/Y _NO
2.If so please identify area. __________________________________________________
________________________________________________________________________________

3.Are you familiar with theraplay? NO / YES -Yes
Theraplay is a therapeutic approach that uses elements of play therapy with the
intention of helping parents and children build better attachment relationships
through attachment-based play.

4.If you are in genetic healthcare, does your organization provide therapy, or
psychosocial services for clients who have a genetic diagnosis? NO / YES - NO

5.If you provide psychosocial services, who provides services; please describe:
________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________

6.Does your genetic healthcare organization employ social workers? NO / YES - YES

7.Do you see a need for social workers within the genetic healthcare
organization? NO / YES - YES

a.If so,please describe how a social worker can benefit your organization:
____We just have the hospital's general soc workers.  I think having one dedicated to genetics would be wonderful, because our families sometimes encounter unusual problems.__________

8.When a child has been diagnosed with a genetic disorder, please describe how
your organization addressed the psychosocial aspects of the child, or the
family, coping with the
diagnosis:  The GC and physician talk to the family about the possible psychological reactions, although we usually let the family's reaction/questions dictate how in depth we go.
________________________________________________________________________________

9.Do you recognize a need for support groups within genetic healthcare? NO / YES - YES

10.Would you consider using telemedicine for implementing support groups NO /
YES - YES

11.Now that you have thought about addressing the psychosocial aspects of a
client/patient who has a genetic diagnosis, would you consider play therapy, or
theraplay, an important component to the care of your patient? NO / YES
Why? __Yes, because not only do many of our diagnoses involve children, many involve individuals with speech and language disorders who cannot express themselves in a 'typical' fashion with ease________________________
________________________________________________________________________________________________________________________________________________________________

I have attached to document in WORD format as well.

Thank you for your time,
Jayne Brown, LSW