Thank you Donna for taking your time in responding to my questions. Jayne


Nale, Donna wrote:
> Answers below.
>
> Donna Nale
> Service Coordinator
> Southern Missouri Telehealth Genetics
> University Missouri Health Care
> 417-277-5619
>
>
>
> -----Original Message-----
> From: Communication for the Heartland Regional Genetics Group on behalf of Jayne Brown
> Sent: Tue 2/26/2008 7:10 PM
> To: [log in to unmask]
> Subject: 
>  
> I am working on a research paper regarding play therapy or therapeutic groups
> for children who have been diagnosed with a genetic disorder.  I am curious if
> there are such groups throughout the Heartland consortium. Please take some
> time to answer these questions and return them to Jayne Brown at
> [log in to unmask]
>
> ATTENTION: This survey has NOT been presented for IRB approval and through
> emailing this document your identity is not anonymous. If you would like the
> results of this survey, please notify Jayne Brown at the above email address.
> Thank you for your time.
>
> Play Therapy is a form of psychotherapy used with children to help them express
> or act out their experiences, feelings, and problems by playing with dolls,
> toys, and other play material, under the guidance or observation of a
> therapist. http://medical-dictionary.thefreedictionary.com
>
> 1.Are you familiar with any play therapy groups addressing genetic disorders in
> children in your area? N/Y  (NO)
> 2.If so please identify area. __________________________________________________
> ________________________________________________________________________________
>
> 3.Are you familiar with theraplay? NO / YES  (NO)
> Theraplay is a therapeutic approach that uses elements of play therapy with the
> intention of helping parents and children build better attachment relationships
> through attachment-based play.
>
> 4.If you are in genetic healthcare, does your organization provide therapy, or
> psychosocial services for clients who have a genetic diagnosis? NO / YES  (NO)
>
> 5.If you provide psychosocial services, who provides services; please describe:
> ________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________
>
> 6.Does your genetic healthcare organization employ social workers? NO / YES  (NO)
>
> 7.Do you see a need for social workers within the genetic healthcare
> organization? NO / YES  (YES)
>
> a.If so,please describe how a social worker can benefit your organization:
> __Social worker would enhance Genetic Services and provide more indepth quality of care.
>
> 8.When a child has been diagnosed with a genetic disorder, please describe how
> your organization addressed the psychosocial aspects of the child, or the
> family, coping with the
> diagnosis: The Geneticist or counselor encourages families to seek help through other organizations or gives advise on how to help with issues that arise specific to the patient.
> ________________________________________________________________________________
>
> 9.Do you recognize a need for support groups within genetic healthcare? NO / YES (YES!)
>
> 10.Would you consider using telemedicine for implementing support groups NO /
> YES (YES)
>
> 11.Now that you have thought about addressing the psychosocial aspects of a
> client/patient who has a genetic diagnosis, would you consider play therapy, or
> theraplay, an important component to the care of your patient? NO / YES (YES)
> Why? Any activity that will help a child/families get involved to help improve their childs abilities and improve their quality of life is important._
> ________________________________________________________________________________________________________________________________________________________________
>
> I have attached to document in WORD format as well.
>
> Thank you for your time,
> Jayne Brown, LSW
>   


-- 
*Jayne Brown, LSW*
Human Service Information Coordinator
Division of Medical Genetics
UND School of Medicine & Health Sciences Room 5910
501 N. Columbia Road Stop 9037
Grand Forks, ND 58202-9037
(701) 777-4276
www.medicine.nodak.edu/genetics

"Be kinder than necessary because everyone you meet is fighting some kind of battle." 

**************************************************
*Confidentiality Note:* This electronic message transmission 
is intended only for the person or entity to which it is 
addressed and may contain information that is privileged, 
confidential or otherwise protected from disclosure. 
If you have received this transmission, but are not the 
intended recipient, you are hereby notified that any 
disclosure, copying, distribution or use of the contents 
of this information is strictly prohibited. If you have 
received this e-mail in error, please contact Division 
of Medical Genetics at (701) 777-4277 and delete and 
destroy the original message and all copies.