From: Matthew Tranter [mailto:[log in to unmask]]
Sent: Friday, December 02, 2011 12:04 PM
Subject: Webinar of REDCap - NCC LTFU Data Workgroup

Good morning all,

As you may know, the Joint Committee comprised of the NCC LTFU Data Workgroup and the NBSTRN Clinical Centers Workgroup has been working to define the data elements for use in the long-term follow-up of individuals identified with a condition through newborn screening.

A next step is to develop a tool to capture the data. NBSTRN is administering a subcontract with the Children’s Hospital of Philadelphia (CHOP) to develop a data capture tool using Research Electronic Data Capture (REDCap - http://project-redcap.org ). We would like to provide an introduction to the tool via webinar.

The webinar is open to all interested stakeholders. The first will be Friday, December 16^th at 10:00 AM EDT, and the second will be Wednesday, December 21^st at 4:00 PM EDT, Please feel free to invite anyone who you think may benefit. Webinar information is below.

Thanks,

Matt

===================================

Information for Webinar on December 21st, Wednesday:

===================================

Topic: Webinar Overview of REDCap for Clinical Centers Workgroup

Date: Wednesday, December 21, 2011

Time: 4:00 pm, Eastern Standard Time (New York, GMT-05:00) Meeting Number: 738 666 277 Meeting Password: 10112011

-------------------------------------------------------

To join the online meeting (Now from mobile devices!)

-------------------------------------------------------

1. Go to https://cbmi.webex.com/cbmi/j.php?ED=162319577&UID=1014564527&PW=NMThmYjdkOGI1&RT=MiMxMQ%3D%3D

2. If requested, enter your name and email address.

3. If a password is required, enter the meeting password: 10112011 4. Click "Join".

5. Follow the instructions that appear on your screen.

To view in other time zones or languages, please click the link:

https://cbmi.webex.com/cbmi/j.php?ED=162319577&UID=1014564527&PW=NMThmYjdkOGI1&ORT=MiMxMQ%3D%3D

-------------------------------------------------------

To join the audio conference only

-------------------------------------------------------

To receive a call back, provide your phone number when you join the meeting, or call the number below and enter the access code.

Call-in toll-free number (US/Canada): 1-877-668-4493 Call-in toll number (US/Canada): +1-408-600-3600 Global call-in numbers: https://cbmi.webex.com/cbmi/globalcallin.php?serviceType=MC&ED=162319577&tollFree=1

Toll-free dialing restrictions: http://www.webex.com/pdf/tollfree_restrictions.pdf

Access code:738 666 277

================================

Information for Webinar on December 16th, Friday:

================================

Topic: Webinar Overview of REDCap for Clinical Centers Workgroup

Date: Friday, December 16, 2011

Time: 10:00 am, Eastern Standard Time (New York, GMT-05:00) Meeting Number: 736 704 294 Meeting Password: 10112011

-------------------------------------------------------

To join the online meeting (Now from mobile devices!)

-------------------------------------------------------

1. Go to https://cbmi.webex.com/cbmi/j.php?ED=161435637&UID=1012158807&PW=NOTVhZGZlY2U0&RT=MiMxMQ%3D%3D