From: Kelly Leight
Sent: Thursday, January 12, 2012 11:33 AM
To: PFNS Listserv
Subject: NBSTRN Virtual Repository Demo

The Newborn Screening Translational Network (NBSTRN) has developed a centralized, web-based dried blood spot (DBS) virtual repository. The system represents information about the stored samples in participating states in a consistent and virtual manner to allow researchers to browse and query the DBS universe. The virtual repository provides NBSTRN members with the tools to review and manage sample requests, configure approved orders, track shipments, and view researcher responses to the samples they have received. To promote the Virtual Repository of Dried Blood Spots (VRDBS), the NBSTRN will be hosting one hour monthly training sessions which will cover a variety of topics and provide time after the demonstration for questions. Please visit our website at www.nbstrn.org <http://www.nbstrn.org>  to see a complete list of webinars. While each webinar is geared toward an intended audience, anyone is welcome to join the webinar to learn more about the VRDBS.

Date:  January 19, 2012, 2:00 PM ET

Webinar Topics:  About the Virtual Repository;  How to Use This Site; Research Support
Intended Audience: Investigator
Registration link: https://www1.gotomeeting.com/register/111649545 <https://www1.gotomeeting.com/register/111649545>

Date:  February 16, 2012, 2:00 PM ET

Webinar Topics:  About the Virtual Repository; Responding to Questions; Institution Administration; Request Administration

Intended Audience: State Administrator

Registration link: https://www1.gotomeeting.com/register/863903768 <https://www1.gotomeeting.com/register/863903768>

Date:  March 15, 2012, 2:00 PM ET

Webinar Topics:  Search for Dried Blood Spots; Request Dried Blood Spots; Provide feedback on Dried Blood Spots

Intended Audience: Investigator

Registration link: https://www1.gotomeeting.com/register/472180360 <https://www1.gotomeeting.com/register/472180360>

Date:  April 19, 2012, 2:00 PM ET

Webinar Topics:  Shipping and Order Administration; Dried Blood Spot Administration; Participant Administration; Review Dried Blood Spot Feedback

Intended Audience: State Administrator and State Lab Technician

Registration link: https://www1.gotomeeting.com/register/503716536 <https://www1.gotomeeting.com/register/503716536>

Date:  May 17, 2012, 2:00 PM ET

Webinar Topics:  About the Virtual Repository; How to Use This Site; Research Support

Intended Audience: Investigator

Registration link: https://www1.gotomeeting.com/register/759286233 <https://www1.gotomeeting.com/register/759286233>

Date:  June 21, 2012, 2:00 PM ET

Webinar Topics:  About the Virtual Repository ;Responding to Questions; Institution Administration; Request Administration
Intended Audience: State Administrator and State Lab Technician

Registration link: https://www1.gotomeeting.com/register/524737208 <https://www1.gotomeeting.com/register/524737208>

Amy J. Hoffman, MPH
Project Manager - Newborn Screening Translational Research Network
American College of Medical Genetics
  & ACMG Foundation
7220 Wisconsin Avenue
Bethesda, MD  20814
Phone:  301-718-9603
Fax:  301-718-9604
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Medical Genetics:  Translating Genes into Health®
http://www.acmg.net <http://www.acmg.net/>


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