Shona R. Whitehead

Program Coordinator

Heartland Genetics and Newborn Screening Collaborative

405-271-8001 ext. 42190

Sent: Wednesday, March 14, 2012 8:45 AM
Subject: [Discussion-pfns] Fwd: [NBS-LIST] AMCHP-CDC Webinar - Newborn Screening Recommendations for Critical Congenital Heart Disease (CCHD): Implications for State Programs

Passing along....Annamarie

Begin forwarded message:

From: Lauren Ramos <[log in to unmask]>

Date: March 13, 2012 2:42:50 PM CDT

Subject: [NBS-LIST] AMCHP-CDC Webinar - Newborn Screening Recommendations for Critical Congenital Heart Disease (CCHD): Implications for State Programs

Please see information below about an upcoming AMCHP and CDC webinar on Critical Congenital Heart Disease.

Newborn Screening Recommendations for Critical Congenital Heart Disease (CCHD): Implications for State Programs
Webinar on March 22, 2012 from 2:00-3:00 PM (EST)

Meeting Description:

In October 2010, the U.S. Department of Health and Human Services (DHHS) Secretary's Advisory Committee on Heritable Disorders in Newborns and Children (SACHDNC) recommended the addition of Critical Congenital Cyanotic Heart Disease (CCCHD) to the Committee's Recommended Uniform Screening Panel (RUSP). In September 2011, DHHS Secretary Sebelius adopted the SACHDNC recommendation to add Critical Congenital Heart Disease (CCHD) to the RUSP.

This webinar will focus on the background of the point-of-care CCHD screening recommendations and potential roles of state health departments. Presentations will include considerations for roles of state health departments with CCHD screening, an overview of state activities, and lessons learned from New Jersey’s experience with implementing mandated screening.

Speakers include:

• Christopher A. Kus, MD, MPH, Associate Medical Director, Division of Family Health, NYS Department of Health
• Jill Glidewell, RN, MSN, MPH, Epidemic Intelligence Service Officer, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention
• Lorraine Freed Garg, MD, MPH, Medical Director, Newborn Screening and Genetic Services, New Jersey Department of Health and Senior Services

Click here to register for the webinar!

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Lauren Raskin Ramos, MPH
Director of Programs

Association of Maternal and Child Health Programs

2030 M Street, NW Suite 350 І Washington, DC 20036
Tel: (202) 775-0436 І Direct: (202) 266-3039

Cell: (703) 980-6577 І Fax: (202) 775-0061

Email: [log in to unmask]