-----Original Message-----
From: Heather Smith [mailto:[log in to unmask]]
Sent: Friday, March 02, 2012 7:26 AM
Subject: FW: HLI Seminar Series Broadcast for Mar 20th Seminar on Newborn Screening
Heather Smith, MPH
Health Planning Consultant
Project Coordinator, Systems in Sync
Kansas Department of Health and Environment Children and Youth with Special Health Care Needs
1000 SW Jackson, Suite 220
Topeka, KS 66612-1274
Direct: 785-296-4747 / Fax: 785-296-8616 [log in to unmask]
**Note name change from Heather Moore to Heather Smith**
www.kdheks.gov/cyshcn ~ www.systemsinsync.org ~ www.kansasresourceguide.org
-----Original Message-----
From: [log in to unmask] [mailto:[log in to unmask]] On Behalf Of Honberg, Lynda (HRSA)
Sent: Thursday, March 01, 2012 4:06 PM
Subject: FW: HLI Seminar Series Broadcast for Mar 20th Seminar on Newborn Screening
See below regarding a webinar aimed at educating primary care providers about decision support tools that can assist with NBS follow-up.
HRSA Learning Institute
Seminar Series Presents...
"ACTions Matter: A candid conversation about newborn screening results and resources that primary care providers can employ in the clinical management of individuals identified with genetic conditions through newborn screening."
Presenters:
Barry H. Thompson, MD Medical Director American College of Medical Genetics | Alisha S. Keehn, MPA Project Manager, NCC American College of Medical Genetics | Eve Kimball, MD Pediatrician Founder and Managing Partner All About Children Pediatric Partners | Thomas Sullivan, MD Pediatrician President and Co-Founder, ALL Pediatrics | Tracy L. Trotter, MD Pediatrician San Ramon Valley Primary Care |
Date: March 20, 2012
Time: 2:00pm - 4:00pm EST
Location: Day of event: https://services.choruscall.com/links/hrsa110310.html
RSVP: https://sharepoint.hrsa.gov/teams/oa/hli/Lists/May%202011%20RSVP%20List/NewForm.aspx
Event Description:
In 2006, following the publication of the Recommended Uniform Newborn Screening Panel, the American College of Medical Genetics (ACMG), through its HRSA-funded National Coordinating Center for the Regional Genetic and Newborn Screening Services Collaboratives (NCC), developed ACTion Sheets (ACT Sheets) as clinical decision support tools for the primary care provider. ACT sheets contain basic information about genetic disorders and outline a plan of appropriate action for the primary care provider to take when acute and life threatening disorders are encountered in the immediate newborn period. Subsequently, new ACT Sheets have been developed to include additional newborn screening identified disorders, transition to adult care, adult-onset, and carrier conditions. ACT Sheets dissemination and widespread adoption remains a central goal of the NCC. Ms. Keehn and Dr. Thompson will engage Drs. Kimball, Sullivan, and Trotter in a robust conversation about ACT Sheets and the newborn screening system from their perspectives as primary care providers. The discussion is intended to increase the awareness about and encourage the use of ACT Sheets.
Please be sure to join us for this informative and engaging session!
Please visit the HRSA Learning Institute's Seminar Series SharePoint site: (https://sharepoint.hrsa.gov/teams/oa/hli/default.aspx) to register for this session and view the presenter bios.
Brought to you by:
Maternal and Child Health Bureau AND HRSA Learning Institute
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Questions? Email [log in to unmask]">[log in to unmask]<mailto:[log in to unmask]> or call
301-443-6283
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