Shona R. Whitehead

Program Coordinator

Heartland Genetics and Newborn Screening Collaborative

405-271-8001 ext. 42190

From: [log in to unmask] [mailto:[log in to unmask]] On Behalf Of Kelly Leight
Sent: Thursday, April 19, 2012 11:32 PM
To: PFNS Listserv; [log in to unmask]
Subject: [Discussion-pfns] Webinar Series regarding the use of residual dried blood spots

Thought you would be interested in this webinar series beginning 4/26. See attachment for details.
Kelly
Kelly R. Leight, J.D.

Coordinator
Preserving the Future of Newborn Screening
URL: www.newbornbloodspots.org

Email: [log in to unmask]">[log in to unmask]
Tel: 973-440-8787


Dear colleague,

In partnership with the Network for Public Health Law, the Association for Public Health Laboratories (APHL), and the National Newborn Screening and Genetics Resource Center; the Newborn Screening Translational Research Network (NBSTRN) is developing a series of webinars regarding the use of residual dried blood spots (DBS) from newborn screening. This webinar series will address multiple issues from ethical, legal, and social perspectives including privacy, protection of research subjects, and ownership.

We would like to invite you to participate in this exciting and informative series. There will be six, one hour sessions on the last Thursday of the month beginning April 26th. This webinar series is intended for public health attorneys, newborn screening programs and laboratories, institutional review boards, HIPAA privacy boards, privacy officers, researchers, and others who have interest in legal, and ethical and policy issues related to secondary uses of residual DBS.

Please see the attached flyer for more information and feel free to pass this along to your colleagues.

**Also as a reminder, the NBSTRN is still hosting monthly VRDBS training webinars, for more information visit our website: https://www.nbstrn.org/research-tools/virtual-repository-of-dried-blood-spots/demo-dates

Sincerely,
The NBSTRN Staff

Irina Smotrich
American College of Medical Genetics & Genomics
Project Coordinator
7220 Wisconsin Avenue
Suite 300
Bethesda, MD 20814
[log in to unmask]:ismotrich">[log in to unmask]<mailto:ismotrich@acmg.net>
www.acmg.net<http://www.acmg.net/>
T: 301-718-9603
F: 301-718-9604