From: Dean, Lori [mailto:[log in to unmask]]
Sent: Friday, May 18, 2012 7:16 AM
To: Whitehead, Shona R. (HSC)
Subject: FW: CCHD Screening- Updates and Stories



Lori Williamson Dean, MS, CGC, LGC
Program Coordinator, Heartland Genetics & NBS Collaborative
Assistant Professor, Department of Genetic Counseling
University of Arkansas for the Medical Sciences

Phone: 405-819-2135

From: Bradshaw, Elizabeth [[log in to unmask]]
Sent: Monday, May 07, 2012 12:57 PM
To: Bradshaw, Elizabeth
Subject: CCHD Screening- Updates and Stories

Dear CCHD Screening Advocates and Friends,


The work that you are doing is amazing!  We are so excited to hear of new research efforts and stories on almost a daily basis. New posts and articles have been added to the CHDSP Online Community. Log-in to check out the following:


-         Hot off the press- A story about the updated meta-analysis that was authored by Drs. Thangaratinam and colleagues and published in The Lancet this month

-         Updates from the United Arab Emirates, including outcomes from their first year of CCHD screening

-         The good work in being done in Michigan, shared by Dr. Anu Prabhu

-         New to the documents folder are several sample waivers to decline screening (as requested by several of you)

-         A story from ABC News on CCHD Screening featuring Dr. Terry Anderson

Please share your good work and stories!


** If you are new to the Online Community, below are login instructions:

Link:  (you will need to copy and paste this link into your browser)
Username: Your email address (eg:  [log in to unmask] )
Password: pulseox2011 (please change when you log-in)



Dr. Martin and Elizabeth



Elizabeth A. Bradshaw, MSN, RN, CPN

Clinical Program Coordinator, Cardiac Research

202-476-5270 (office) 

202-731-9397 (cell)


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