From: Liza Creel [mailto:[log in to unmask]]
Sent: Monday, August 13, 2012 11:19 AM
To: 'Liza Creel'
Subject: FW: Public Comment Period Starts Friday for NHLBI-Sponsored Expert Panel Report on the Management of Sickle Cell Disease
Dear MSGRC Friends,
Please see the email below regarding a call for public comment from the National Heart, Lung, and Blood Institute (NHLBI). NHLBI is seeking input on the Expert Panel Report on the Management of Sickle Cell Disease. Please take a few moments to review the report and provide feedback if possible. We would also like to encourage you to send this request to others (e.g. consumer groups, primary care organizations, etc) in your state that may be interested in providing comment.
Sincerely,
Liza
--
Liza M. Creel, MPH
Director, Community and Collaborative Projects
Project Manager, Mountain States Genetics Regional Collaborative
Texas Health Institute
8501 N. MoPac Expressway, Suite 300
Austin, Texas 78759
Phone: 512-279-3906
Fax: 512-279-3911
From: Lavine, Greg (NIH/NHLBI) [E] [[log in to unmask]]
Sent: Wednesday, August 08, 2012 2:47 PM
To: Lavine, Greg (NIH/NHLBI) [E]
Subject: Public Comment Period Starts Friday for NHLBI-Sponsored Expert Panel Report on the Management of Sickle Cell Disease
Good Afternoon,
The National Heart, Lung, and Blood Institute (NHLBI) is pleased to announce that progress has been made on the NHLBI-sponsored Expert Panel Report on the Management of Sickle Cell Disease. The draft report will be available for public review starting Friday, August 10, 2012. We would like a wide range of perspectives and feedback to inform the final guidelines document.
We would appreciate it if you could review the document and provide comment. We also request that you consider sharing the link to the guidelines with others, and if you have a website, we encourage you to post the link below to let others know about the public comment period.
Suggested wording for a link on your website: A draft of the National Heart, Lung, and Blood Institute-sponsored Expert Panel Report on the Management of Sickle Cell Disease is available for public comment August 10 through August 31, 2012 and can be accessed at www.nhlbi.nih.gov/guidelines/scd/index.htm
Please let me know if you have questions or need additional information.
The draft will not be available until Friday, August 10, 2012, but the page that will contain the draft is live.
Sincerely,
Greg Lavine
(Please let me know if you would not like to receive future emails about the NHLBI’s activities related to sickle cell disease.)
Greg Lavine
NHLBI Press Team
Technical Writer
Public Affairs Branch
National Heart, Lung, and Blood Institute
31 Center Drive, Room 4A10
Bethesda, MD 20892
301 496-4236 - phone
301 402-2405 - fax
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