From: Shuger, Jill (HRSA) [mailto:[log in to unmask]]
Sent: Thursday, March 28, 2013 3:42 PM
Subject: Fw: SACHDNC Webinar - April 19 - Registration Open

 

 

From: Sydney Vranna [mailto:[log in to unmask]]
Sent: Thursday, March 28, 2013 03:48 PM
To: Sydney Vranna <[log in to unmask]>
Subject: SACHDNC Webinar - April 19 - Registration Open
 

ACHDNC

 

30th MEETING OF THE SECRETARY'S ADVISORY COMMITTEE ON HERITABLE DISORDERS

IN NEWBORNS AND CHILDREN (SACHDNC) WEBINAR
April 19, 2013

9:30 a.m. – 4:00 p.m.

 

Registration is now open for the April 19, 2013 SACHDNC Webinar. Please see below for details on how to register for the webinar.

 

 

REGISTRATION

Please register for the webinar at: https://www.blsmeetings.net/SACHDNC/index.cfm

 

You must register by 5:00 p.m. Eastern Time, Wednesday, April 10, 2013 to attend this webinar.

 

AGENDA

The full meeting agenda will be made available soon on the website.

 

Tentative agenda topics include:

·         A policy paper report on the impact of recommendations related to sickle cell trait screening;

·         The impact of the Affordable Care Act on individuals with heritable disorders

·         Update on the Pompe condition nomination

·         Update on surveillance activities by the Centers for Disease Control and Prevention (CDC) on Critical Congenital Heart Disease (CCHD) and its link to infant health and mortality

·         Lessons learned from Early Hearing Detection and Intervention (EHDI) and their applicability to CCHD screening

·         Updates on priority projects from the Advisory Committee’s subcommittees on Laboratory Standards and Procedures, Follow-up and Treatment, and Education and Training

 

MEETING MATERIALS

The meeting materials briefing book, supplemental materials, and agenda will be available soon on the secure website for your review. You will be emailed a secure login and password to access these documents when they are available.

 

CONTACTS:

Programmatic Questions:

Debi Sarkar, MPH

HRSA MCHB Genetic Services Branch

5600 Fishers Lane, Room 18A-19 Rockville, Maryland 20857

Phone:   301-443-0959

Email:     [log in to unmask] 

 

Registration Questions:

Sydney Vranna, Conference Planner
Seamon Corporation

9001 Edmonston Road, Suite 200

Greenbelt, MD  20770
Phone:
   301.577.0244, ext. 2800
Email:    
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