Recommendation 2 – Data Security and Access to Databases
Tuesday, May 14
12:00 - 1:00 pm EDT REGISTER
Presenters:
Latanya Sweeney - Harvard University;
Dixie Baker - Martin, Blanck, and Associates LLC;
Yaniv Erlich - Whitehead Institute for Biomedical Research.
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What is a registry? What is a biobank?
Thursday, May 16
12:00 - 1:00 pm EDT
REGISTER
Registries for All (Reg4ALL) is an innovative new registry platform that aims to accelerate research and improve health for all. The next webinar in this series will look at nuts and bolts on registries and biobanks: what are they good for?
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CYSHCN in Healthy People 2020: A Consumer Perspective
Thursday, May 16
3:00 - 4:00 pm EDT
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This webinar will review Envision 2020 and the Consumer Perspective document to discuss how Healthy People 2020 objectives can influence and provide direction for improving systems and services for individuals with special healthcare needs.
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Powerful Patient Data: Genomics and Family Health History in HIT
May 30-31
Salt Lake City, UT REGISTER
Registration deadline
May 17 Genetic Alliance and Intermountain Healthcare are hosting a summit with the goal of ensuring that family health history and genetic/genomic information can be accessed and activated within the electronic medical record to drive better patient care. The summit will also feature both a technology demonstration and vendor exhibits.
Agenda
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Assuring Integrity while Facilitating Innovation in Medical Research
June 5
Washington, DC REGISTER The goal of the workshop is to articulate and clarify conflict of interest (COI) policies in the context of the current landscape for medical advancement, examine the impact of COI policies on innovation, and identify best practices to facilitate innovation under the current COI policies while still ensuring scientific integrity and public trust.
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HealthBeat 2013
May 20-21
San Francisco, CA REGISTER
code "Genetic"
to save 35% The HealthBeat 2013 program is packed with over 65 industry leading speakers, high-level chats, breakout sessions, networking initiatives, and a brand new health-tech startup competition. Genetic Alliance President and CEO Sharon Terry will moderate a session: Precision Health: Big Data Gets Personal, how are data, analytics and new technologies being used to help with personalized/precision medicine?
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