From: Sharon Terry
Sent: Thursday, May 09, 2013 8:05 AM
Subject: May Webinars and Meetings Extravaganza
Genetic Alliance is in overdrive this month! May is packed with webinars and meetings to suit the diverse tastes and interests of our network. Read on to find out what's on the agenda, and dive into the discussions!
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[http://gallery.mailchimp.com/a9e55c5fcbe8bce63e2c83eb9/images/GeneticAlliance_color300.jpg] Reminder About
Upcoming Events
Genetic Alliance is in overdrive this month! May is packed with webinars and meetings to suit the diverse tastes and interests of our network. Read on to find out what's on the agenda, and dive into the discussions!
Upcoming Webinars:
What about Privacy and Progress in Whole Genome Sequencing? webinar series<https://urldefense.proofpoint.com/v1/url?u=http://geneticalliance.us5.list-manage1.com/track/click?u%3Da9e55c5fcbe8bce63e2c83eb9%26id%3D816eeffbdb%26e%3D58aabc845e&k=7DHVT22D9IhC0F3WohFMBA%3D%3D%0A&r=QD0MALm7li4xmB3DnzvTKy2CVOWeUGJzsljAyiiNZhA%3D%0A&m=4hjNm8YiDVNZKKeLHeW3we1Bi5nHh9kOBYUMfN9AtaY%3D%0A&s=bc0e2aabc12035118b0a300b4506173d6b72426fc6fb9bcc5d160f52f4d6678a>
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Registries for All webinar series<https://urldefense.proofpoint.com/v1/url?u=http://geneticalliance.us5.list-manage.com/track/click?u%3Da9e55c5fcbe8bce63e2c83eb9%26id%3D91ab537b12%26e%3D58aabc845e&k=7DHVT22D9IhC0F3WohFMBA%3D%3D%0A&r=QD0MALm7li4xmB3DnzvTKy2CVOWeUGJzsljAyiiNZhA%3D%0A&m=4hjNm8YiDVNZKKeLHeW3we1Bi5nHh9kOBYUMfN9AtaY%3D%0A&s=735390798a0ce31dcffd97b4421005d5ed0d8c00975b27b4ebda475a6fcebc90>
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Children & Youth with Special Healthcare Needs in Healthy People 2020: A Consumer Perspective<https://urldefense.proofpoint.com/v1/url?u=http://geneticalliance.us5.list-manage.com/track/click?u%3Da9e55c5fcbe8bce63e2c83eb9%26id%3Da101e215ee%26e%3D58aabc845e&k=7DHVT22D9IhC0F3WohFMBA%3D%3D%0A&r=QD0MALm7li4xmB3DnzvTKy2CVOWeUGJzsljAyiiNZhA%3D%0A&m=4hjNm8YiDVNZKKeLHeW3we1Bi5nHh9kOBYUMfN9AtaY%3D%0A&s=682163d02617eacb96002c32126743314d041834de597de79657efe1460e408f>
Upcoming Meetings:
Powerful Patient Data: Genomics and Family Health History in Health IT<https://urldefense.proofpoint.com/v1/url?u=http://geneticalliance.us5.list-manage1.com/track/click?u%3Da9e55c5fcbe8bce63e2c83eb9%26id%3D04f121dd62%26e%3D58aabc845e&k=7DHVT22D9IhC0F3WohFMBA%3D%3D%0A&r=QD0MALm7li4xmB3DnzvTKy2CVOWeUGJzsljAyiiNZhA%3D%0A&m=4hjNm8YiDVNZKKeLHeW3we1Bi5nHh9kOBYUMfN9AtaY%3D%0A&s=dd026f691860021ad2be02702829b329472dc4b7f6b2f0f0637dfb10adfc99bb>
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IOM Workshop: Assuring Integrity while Facilitating Innovation in Medical Research<https://urldefense.proofpoint.com/v1/url?u=http://geneticalliance.us5.list-manage.com/track/click?u%3Da9e55c5fcbe8bce63e2c83eb9%26id%3D354ac62077%26e%3D58aabc845e&k=7DHVT22D9IhC0F3WohFMBA%3D%3D%0A&r=QD0MALm7li4xmB3DnzvTKy2CVOWeUGJzsljAyiiNZhA%3D%0A&m=4hjNm8YiDVNZKKeLHeW3we1Bi5nHh9kOBYUMfN9AtaY%3D%0A&s=d0c77a369026b07128bc4999510e788c2599c2af50506604f6387bef3af125ce>
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HealthBeat 2013<https://urldefense.proofpoint.com/v1/url?u=http://geneticalliance.us5.list-manage1.com/track/click?u%3Da9e55c5fcbe8bce63e2c83eb9%26id%3Db46fa4a1f4%26e%3D58aabc845e&k=7DHVT22D9IhC0F3WohFMBA%3D%3D%0A&r=QD0MALm7li4xmB3DnzvTKy2CVOWeUGJzsljAyiiNZhA%3D%0A&m=4hjNm8YiDVNZKKeLHeW3we1Bi5nHh9kOBYUMfN9AtaY%3D%0A&s=11ab595e0fedd36a595e3b96290e6fa4e56d382423f7f318dca7ef9ee3a6fafa>
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Recommendation 2 - Data Security and Access to Databases
Tuesday, May 14
12:00 - 1:00 pm EDT
REGISTER<https://urldefense.proofpoint.com/v1/url?u=http://geneticalliance.us5.list-manage.com/track/click?u%3Da9e55c5fcbe8bce63e2c83eb9%26id%3Dbfe0a2b525%26e%3D58aabc845e&k=7DHVT22D9IhC0F3WohFMBA%3D%3D%0A&r=QD0MALm7li4xmB3DnzvTKy2CVOWeUGJzsljAyiiNZhA%3D%0A&m=4hjNm8YiDVNZKKeLHeW3we1Bi5nHh9kOBYUMfN9AtaY%3D%0A&s=6f45c115c28abfd87069966c4358a5c626e633992bbae53cf9d70b6dbcee2906>
Presenters:
Latanya Sweeney - Harvard University;
Dixie Baker - Martin, Blanck, and Associates LLC;
Yaniv Erlich - Whitehead Institute for Biomedical Research.
View all webinars<https://urldefense.proofpoint.com/v1/url?u=http://geneticalliance.us5.list-manage.com/track/click?u%3Da9e55c5fcbe8bce63e2c83eb9%26id%3D00b481f1f4%26e%3D58aabc845e&k=7DHVT22D9IhC0F3WohFMBA%3D%3D%0A&r=QD0MALm7li4xmB3DnzvTKy2CVOWeUGJzsljAyiiNZhA%3D%0A&m=4hjNm8YiDVNZKKeLHeW3we1Bi5nHh9kOBYUMfN9AtaY%3D%0A&s=500f7e9e9774ea0a5ebbff82f17fabb7feeaac96b04eba521124dcc90419b5c4>
View past webinars<https://urldefense.proofpoint.com/v1/url?u=http://geneticalliance.us5.list-manage.com/track/click?u%3Da9e55c5fcbe8bce63e2c83eb9%26id%3Dcfd3621820%26e%3D58aabc845e&k=7DHVT22D9IhC0F3WohFMBA%3D%3D%0A&r=QD0MALm7li4xmB3DnzvTKy2CVOWeUGJzsljAyiiNZhA%3D%0A&m=4hjNm8YiDVNZKKeLHeW3we1Bi5nHh9kOBYUMfN9AtaY%3D%0A&s=204b9c9e928ebea7630cb7be7cedf71d1a58a1e784b7d5c45bb95375077eef0f>
[http://gallery.mailchimp.com/a9e55c5fcbe8bce63e2c83eb9/images/Reg4All.jpg]
What is a registry? What is a biobank?
Thursday, May 16
12:00 - 1:00 pm EDT
REGISTER<https://urldefense.proofpoint.com/v1/url?u=http://geneticalliance.us5.list-manage.com/track/click?u%3Da9e55c5fcbe8bce63e2c83eb9%26id%3D236846d22e%26e%3D58aabc845e&k=7DHVT22D9IhC0F3WohFMBA%3D%3D%0A&r=QD0MALm7li4xmB3DnzvTKy2CVOWeUGJzsljAyiiNZhA%3D%0A&m=4hjNm8YiDVNZKKeLHeW3we1Bi5nHh9kOBYUMfN9AtaY%3D%0A&s=6dc1a3bdfe840638afbbec70511558e746ca6ae59e62ecb412400a2d56680d6e>
Registries for All (Reg4ALL) is an innovative new registry platform that aims to accelerate research and improve health for all. The next webinar in this series will look at nuts and bolts on registries and biobanks: what are they good for?
View all webinars<https://urldefense.proofpoint.com/v1/url?u=http://geneticalliance.us5.list-manage.com/track/click?u%3Da9e55c5fcbe8bce63e2c83eb9%26id%3Da9f4bd42ec%26e%3D58aabc845e&k=7DHVT22D9IhC0F3WohFMBA%3D%3D%0A&r=QD0MALm7li4xmB3DnzvTKy2CVOWeUGJzsljAyiiNZhA%3D%0A&m=4hjNm8YiDVNZKKeLHeW3we1Bi5nHh9kOBYUMfN9AtaY%3D%0A&s=b2d3becf87b13356c39155d94589a85d8f7d46094cb6982a9c06b499d1f73474>
View past webinars<https://urldefense.proofpoint.com/v1/url?u=http://geneticalliance.us5.list-manage.com/track/click?u%3Da9e55c5fcbe8bce63e2c83eb9%26id%3D0eafa97805%26e%3D58aabc845e&k=7DHVT22D9IhC0F3WohFMBA%3D%3D%0A&r=QD0MALm7li4xmB3DnzvTKy2CVOWeUGJzsljAyiiNZhA%3D%0A&m=4hjNm8YiDVNZKKeLHeW3we1Bi5nHh9kOBYUMfN9AtaY%3D%0A&s=bf884dcb4d945c4bae209e027fca07392c714ee5ef26d2156d3d81126fe560e5>
[http://gallery.mailchimp.com/a9e55c5fcbe8bce63e2c83eb9/images/hp2020dde5d5.png]
CYSHCN in Healthy People 2020: A Consumer Perspective
Thursday, May 16
3:00 - 4:00 pm EDT
REGISTER<https://urldefense.proofpoint.com/v1/url?u=http://geneticalliance.us5.list-manage1.com/track/click?u%3Da9e55c5fcbe8bce63e2c83eb9%26id%3D2cf797859c%26e%3D58aabc845e&k=7DHVT22D9IhC0F3WohFMBA%3D%3D%0A&r=QD0MALm7li4xmB3DnzvTKy2CVOWeUGJzsljAyiiNZhA%3D%0A&m=4hjNm8YiDVNZKKeLHeW3we1Bi5nHh9kOBYUMfN9AtaY%3D%0A&s=4b58e5fa394350ae2fb0f8674bf72135df9ef80fcbdb8769660b7cf7f5e7fbec>
This webinar will review Envision 2020 and the Consumer Perspective document to discuss how Healthy People 2020 objectives can influence and provide direction for improving systems and services for individuals with special healthcare needs.
Read HP2020 report<https://urldefense.proofpoint.com/v1/url?u=http://geneticalliance.us5.list-manage1.com/track/click?u%3Da9e55c5fcbe8bce63e2c83eb9%26id%3Dda35ea3081%26e%3D58aabc845e&k=7DHVT22D9IhC0F3WohFMBA%3D%3D%0A&r=QD0MALm7li4xmB3DnzvTKy2CVOWeUGJzsljAyiiNZhA%3D%0A&m=4hjNm8YiDVNZKKeLHeW3we1Bi5nHh9kOBYUMfN9AtaY%3D%0A&s=b1cd31bf54ffeb6fc9ad14bf83e25636b7a7c856856ab8357ec22131a0f3f7b6>
[http://gallery.mailchimp.com/a9e55c5fcbe8bce63e2c83eb9/images/summit.144541ac21c5166c5fff66b64.jpg]
Powerful Patient Data: Genomics and Family Health History in HIT
May 30-31
Salt Lake City, UT
REGISTER<https://urldefense.proofpoint.com/v1/url?u=http://geneticalliance.us5.list-manage.com/track/click?u%3Da9e55c5fcbe8bce63e2c83eb9%26id%3Da5004404b1%26e%3D58aabc845e&k=7DHVT22D9IhC0F3WohFMBA%3D%3D%0A&r=QD0MALm7li4xmB3DnzvTKy2CVOWeUGJzsljAyiiNZhA%3D%0A&m=4hjNm8YiDVNZKKeLHeW3we1Bi5nHh9kOBYUMfN9AtaY%3D%0A&s=220f2c49de12e4c05f7c260c4b1d4bc240ed31676da14bc1840973c1f8198350>
Registration deadline
May 17
Genetic Alliance and Intermountain Healthcare are hosting a summit with the goal of ensuring that family health history and genetic/genomic information can be accessed and activated within the electronic medical record to drive better patient care. The summit will also feature both a technology demonstration and vendor exhibits.
Agenda<https://urldefense.proofpoint.com/v1/url?u=http://geneticalliance.us5.list-manage.com/track/click?u%3Da9e55c5fcbe8bce63e2c83eb9%26id%3D0fadf4c568%26e%3D58aabc845e&k=7DHVT22D9IhC0F3WohFMBA%3D%3D%0A&r=QD0MALm7li4xmB3DnzvTKy2CVOWeUGJzsljAyiiNZhA%3D%0A&m=4hjNm8YiDVNZKKeLHeW3we1Bi5nHh9kOBYUMfN9AtaY%3D%0A&s=0ad25103741924423e409c2429448da7c9d06a5103b5775dc9db9af278bb8c10>
More Information<https://urldefense.proofpoint.com/v1/url?u=http://geneticalliance.us5.list-manage.com/track/click?u%3Da9e55c5fcbe8bce63e2c83eb9%26id%3D3b19f74b5f%26e%3D58aabc845e&k=7DHVT22D9IhC0F3WohFMBA%3D%3D%0A&r=QD0MALm7li4xmB3DnzvTKy2CVOWeUGJzsljAyiiNZhA%3D%0A&m=4hjNm8YiDVNZKKeLHeW3we1Bi5nHh9kOBYUMfN9AtaY%3D%0A&s=79253b37bb8060bea1401126f9b441d1eff8310f49a86bf27065ee9c5a6db3ab>
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Assuring Integrity while Facilitating Innovation in Medical Research
June 5
Washington, DC
REGISTER<https://urldefense.proofpoint.com/v1/url?u=http://geneticalliance.us5.list-manage1.com/track/click?u%3Da9e55c5fcbe8bce63e2c83eb9%26id%3Df288c0c731%26e%3D58aabc845e&k=7DHVT22D9IhC0F3WohFMBA%3D%3D%0A&r=QD0MALm7li4xmB3DnzvTKy2CVOWeUGJzsljAyiiNZhA%3D%0A&m=4hjNm8YiDVNZKKeLHeW3we1Bi5nHh9kOBYUMfN9AtaY%3D%0A&s=fc569548db12eb9f725b6f2b66176d19f9073f5e3e7fe8daccc5d3752f458077>
The goal of the workshop is to articulate and clarify conflict of interest (COI) policies in the context of the current landscape for medical advancement, examine the impact of COI policies on innovation, and identify best practices to facilitate innovation under the current COI policies while still ensuring scientific integrity and public trust.
Register for the Webcast<https://urldefense.proofpoint.com/v1/url?u=http://geneticalliance.us5.list-manage.com/track/click?u%3Da9e55c5fcbe8bce63e2c83eb9%26id%3D5c0e639f36%26e%3D58aabc845e&k=7DHVT22D9IhC0F3WohFMBA%3D%3D%0A&r=QD0MALm7li4xmB3DnzvTKy2CVOWeUGJzsljAyiiNZhA%3D%0A&m=4hjNm8YiDVNZKKeLHeW3we1Bi5nHh9kOBYUMfN9AtaY%3D%0A&s=92b3792972b5605c0e9cd88b5bee5505b1c5a4f035494deae8583a67f728e946>
More Information<https://urldefense.proofpoint.com/v1/url?u=http://geneticalliance.us5.list-manage1.com/track/click?u%3Da9e55c5fcbe8bce63e2c83eb9%26id%3De4ec50b2ff%26e%3D58aabc845e&k=7DHVT22D9IhC0F3WohFMBA%3D%3D%0A&r=QD0MALm7li4xmB3DnzvTKy2CVOWeUGJzsljAyiiNZhA%3D%0A&m=4hjNm8YiDVNZKKeLHeW3we1Bi5nHh9kOBYUMfN9AtaY%3D%0A&s=8d654cffede5672c084d3be7ea003cda9aba25614d2b61ce26075e7803acb4a9>
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HealthBeat 2013
May 20-21
San Francisco, CA
REGISTER<https://urldefense.proofpoint.com/v1/url?u=http://geneticalliance.us5.list-manage.com/track/click?u%3Da9e55c5fcbe8bce63e2c83eb9%26id%3Ddf3f35584b%26e%3D58aabc845e&k=7DHVT22D9IhC0F3WohFMBA%3D%3D%0A&r=QD0MALm7li4xmB3DnzvTKy2CVOWeUGJzsljAyiiNZhA%3D%0A&m=4hjNm8YiDVNZKKeLHeW3we1Bi5nHh9kOBYUMfN9AtaY%3D%0A&s=79e992efa35084352bdea7c08c56468b45d86e011f151c7bde3b46c59433286c>
code "Genetic"
to save 35%
The HealthBeat 2013 program is packed with over 65 industry leading speakers, high-level chats, breakout sessions, networking initiatives, and a brand new health-tech startup competition. Genetic Alliance President and CEO Sharon Terry will moderate a session: Precision Health: Big Data Gets Personal, how are data, analytics and new technologies being used to help with personalized/precision medicine?
More Information<https://urldefense.proofpoint.com/v1/url?u=http://geneticalliance.us5.list-manage1.com/track/click?u%3Da9e55c5fcbe8bce63e2c83eb9%26id%3D62eecdaaef%26e%3D58aabc845e&k=7DHVT22D9IhC0F3WohFMBA%3D%3D%0A&r=QD0MALm7li4xmB3DnzvTKy2CVOWeUGJzsljAyiiNZhA%3D%0A&m=4hjNm8YiDVNZKKeLHeW3we1Bi5nHh9kOBYUMfN9AtaY%3D%0A&s=fec75fc2eab2264139fe92629dd595a220dfeb4dd6ebd98da8a12d2b6b74e3de>
This is Genetic Alliance Network Announcements email list.
Genetic Alliance
4301 Connecticut Avenue NW
Suite 404
Washington, DC 20008
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