Can the prompt be different for community members and researchers? From: PDQNet Core Research Team [mailto:[log in to unmask]] On Behalf Of Nagykaldi, Zsolt J (HSC) Sent: Thursday, January 21, 2016 6:41 PM To: [log in to unmask] Subject: Re: PDQNet Concept Mapping Launch & Development of a “Prompt” Cognitive / analytic for introverts: "When I want to work with researchers who study how to make healthcare better, I need to think about the following things..." Practical / action-oriented for extroverts: "The best ways I, as a patient, can work with researchers to improve healthcare, are..." Zsolt Nagykaldi, PhD Associate Professor Director of Research University of Oklahoma Health Sciences Center Department of Family & Preventive Medicine 900 N.E. 10th Street Oklahoma City, OK 73104 Phone(1): (405) 271-2370 Phone(2): (405) 271-8000 ext.1-32207 Fax: (405) 271-2784 ________________________________ From: PDQNet Core Research Team [[log in to unmask]] on behalf of Norton, Barbara L. (HSC) [[log in to unmask]] Sent: Thursday, January 21, 2016 3:25 PM To: [log in to unmask]<mailto:[log in to unmask]> Subject: Re: PDQNet Concept Mapping Launch & Development of a “Prompt” NOTE TO PDQNet TEAM – Please add your prompt suggestions at least once and ideally more (!) before Monday’s call. Then “Reply to All” so that others can add theirs. Group to Decide on Prompt: After visiting with Ken Oakley today, he clarified that we should not invite our community/clinician expert team members to debate what prompt to use for the brainstorming because they will also be participants in the concept mapping process and we do not want to dilute the process, so to speak. He stressed that our research team of four, with his support, should select the prompt, then test it out with a small group that will not be a part of the PDQNet concept mapping exercises, following which the research team (the four of us) can tweak it. Phrasing of the Prompt: He also said that the prompt should not change, not even a single word, from group to group. That was a point I was not previously clear on. The only thing you can change is that you can qualify how you are asking the group to answer the prompt. For example, we can ask everyone to answer as a “patient” (or “primary care patient” or “community member”) – regardless of whether they are associated with one of our patient/community partners, a PBRN, or function professionally as an academic or community-based researcher. We can also ask the PBRN reps to answer as community clinicians rather than as patients. For myself, I think we will get more robust findings if we have all groups answer in the same way regardless of their professional identity – that is, as patients/community members – but I am interested in what others think about this. PDQNet Concept Mapping Groups: There will be three different types of concept mapping groups – 1) patient/community partner reps, 2) PBRN reps, and 3) academic health services researchers, and it is important that there not be overlapping members. In instances where a participant may have membership in more than one of these groups, it will be important to stress that they – for the purpose of a given exercise – participate (or think) as a member of that group, e.g. PBRN reps. Barbara’s Updated List of Potential Prompts (ignore prior list): • People like me can have a role in health care research by … • When I think of health research that matters to me, I think of … • A lot of money goes into answering questions and solving problems so that people stay healthy and so that everyday health care works better. If someone like me could tell those researchers how to do a better job, I’d want to … • The best way to get patients, doctors, and communities involved in research about making primary health care work better for me and people like me is … • The best way to learn about what matters to people who use primary healthcare is to … -------- Original message -------- From: "Norton, Barbara L. (HSC)" <[log in to unmask]<mailto:[log in to unmask]>> Date: 01/20/2016 5:57 PM (GMT-05:00) To: [log in to unmask]<mailto:[log in to unmask]> Subject: PDQNet Concept Mapping Launch & Development of a “Prompt” PDQNet Concept Mapping Launch & Development of a “Prompt” 1/20/2016 We are about to launch the PDQNet Year 2 concept mapping exercise. To begin the first step – a brainstorming process that lasts for about an hour in a group setting (or can be done on-line…probably for much less time), we need to start it with a “prompt statement.” This prompt statement can constitute a single unfinished sentence or can be introduced by a series of sentences followed by an unfinished sentence or question. Keep in mind, we are conducting this exercise, and conducting this methods study, to develop recommendations to advise PCORI about good practices for empowering patients and community groups to become active participants in identifying and prioritizing the agenda of primary healthcare research. Audiences: We’ve thus far being thinking about prompts appropriate for members of patient/community organizations, intended to be as many as 25-30 people at each of our 3 PDQNet sites. To get to the total sample of 25-30, this exercise can be done just with the PDQNet patient/community partner, or it can be done with the community partner plus participants from other research-engaged organizations. The thing to remember is that the more you add groups, the more the work multiplies. One other thing: when large group activities are called for – a total of three times during the next year – they can be done in one big group or in a couple smaller groups. Beyond the participants from patients/community representatives, the exercise must also be conducted with 5-10 PBRN Board/advisory board members or other community clinicians in each site. When thinking about prompts, we will want to choose ones that can be easily adapted to work for both patient & clinician audiences. Finally, we want to try and conduct this exercise with a sample of 5-10 academic researchers at each site. Obviously, the phrasing of any selected prompt would need to be flipped so that it still focuses on community (patient or clinician) engagement in primary healthcare research. Even though this step was not outlined in the proposal, we believe that having this data will not add much work and can help us to understand research perspectives when developing content for the toolkits. Remember: Education levels will range from very low to quite high, and there will be respondents who are strictly Spanish-speaking. Obviously the prompt will have to be translated, but it’s also important to realize that varying cultural perspectives will be represented. To start our brainstorming about possible prompts, some are listed below. Without critiquing any of those that have been listed, please add your own suggestions and feel free to build upon the ones that are already listed. Please take a few minutes to do this as soon as possible after you receive this message and Reply to All. Then feel free to build upon whatever has been added as new thoughts come to mind. In addition to CRT members, content experts (Oakley, Wichersham, Hamm) are encouraged to join in. During the first CRT call with Ken Oakley next week, we will parse the “prompts” list down and later decide upon the one we will use after a dialogue with some of our patient/community reps in early February. BRAINSTORMED LIST OF POSSIBLE PROMPTS: • The role for patients [community clinicians], in health care research is … • When I think of health research that matters to me in my day-to-day life, I think of … • A lot of people are trying to answer questions and solve problems so that people stay healthy and so that everyday [primary] health care works better. If someone [a clinician] like me wanted to provide a patient [community] perspective on ways those people [researchers] could do a better job providing answers to the questions I have, I’d want to … • The best way to get patients [clinicians] and communities involved in research about making primary health care work better for me and people [clinicians] like me is • The best way to learn about what matters to people [clinicians] who use [deliver, provide] primary healthcare is to … Barbara L. Norton, DrPH Assistant Professor of Research // Research Division Department of Family and Preventive Medicine // University of Oklahoma Health Sciences Center 900 NE 10th St Room 2209 // Oklahoma City OK 73104 p 405.271.3733 | c 405.308.0801 | f 405.271.2784 | e [log in to unmask]<mailto:[log in to unmask]>