Hi Barbara and team - here is one possible prompt that would work with our patient community: *The things that matter to me and my family about health care and seeing the doctor, that I also think people should spend time studying and making better are.... * On Thu, Jan 21, 2016 at 1:25 PM, Norton, Barbara L. (HSC) < [log in to unmask]> wrote: > *NOTE TO PDQNet TEAM – Please add your prompt suggestions at least once > and ideally more (!) before Monday’s call. Then “Reply to All” so that > others can add theirs.* > > > > *Group to Decide on Prompt:* > > After visiting with Ken Oakley today, he clarified that *we should not > invite our community/clinician expert team members to debate what prompt to > use for the brainstorming* because they will also be participants in the > concept mapping process and we do not want to dilute the process, so to > speak. He stressed that our *research team of four, with his support, > should select the prompt, then test it out *with a small group that will > not be a part of the PDQNet concept mapping exercises, following which the > research team (the four of us) can tweak it. > > > > *Phrasing of the Prompt:* > > He also said that the prompt * should not change, not even a single word*, > from group to group. That was a point I was not previously clear on. The > only thing you can change is that you can qualify *how *you are asking > the group to answer the prompt. For example, we can ask everyone to answer > as a “patient” (or “primary care patient” or “community member”) – > regardless of whether they are associated with one of our patient/community > partners, a PBRN, or function professionally as an academic or > community-based researcher. We can also ask the PBRN reps to answer as > community clinicians rather than as patients. *For myself, I think we > will get more robust findings if we have all groups answer in the same way > regardless of their professional identity – that is, as patients/community > members – but I am interested in what others think about this.* > > *PDQNet Concept Mapping Groups:* > > There will be three different types of concept mapping groups – 1) > patient/community partner reps, 2) PBRN reps, and 3) academic health > services researchers, and it is important that there not be overlapping > members. In instances where a participant may have membership in more than > one of these groups, it will be important to stress that they – for the > purpose of a given exercise – participate (or think) as a member of that > group, e.g. PBRN reps. > > > > *Barbara’s Updated List of Potential Prompts (ignore prior list):* > > • *People like me can have a role in health care > research by …* > > • *When I think of health research that matters to me, I > think of …* > > • *A lot of money goes into answering questions and > solving problems so that people stay healthy and so that everyday health > care works better. If someone like me could tell those researchers how to > do a better job, I’d want to … * > > • *The best way to get patients, doctors, and > communities involved in research about making primary health care work > better for me and people like me is … * > > • *The best way to learn about what matters to people > who use primary healthcare is to …* > > > > > > -------- Original message -------- > From: "Norton, Barbara L. (HSC)" <[log in to unmask] > <[log in to unmask]>> > Date: 01/20/2016 5:57 PM (GMT-05:00) > To: [log in to unmask] <[log in to unmask]> > Subject: PDQNet Concept Mapping Launch & Development of a “Prompt” > > *PDQNet Concept Mapping Launch & Development of a “Prompt”* > > *1/20/2016* > > We are about to launch the *PDQNet Year 2 concept mapping exercise*. To > begin the first step – a brainstorming process that lasts for about an hour > in a group setting (or can be done on-line…probably for much less time), we > need to start it with a “*prompt statement*.” This prompt statement can > constitute a single unfinished sentence or can be introduced by a series of > sentences followed by an unfinished sentence or question. > > *Keep in mind, we are conducting this exercise, and conducting this > methods study, to develop recommendations to advise PCORI about good > practices for empowering patients and community groups to become active > participants in identifying and prioritizing the agenda of primary > healthcare research.* > > *Audiences:* > > We’ve thus far being thinking about prompts appropriate for *members of > patient/community organizations*, intended to be as many as 25-30 people > at each of our 3 PDQNet sites. To get to the total sample of 25-30, this > exercise can be done just with the PDQNet patient/community partner, or it > can be done with the community partner plus participants from other > research-engaged organizations. The thing to remember is that the more you > add groups, the more the work multiplies. One other thing: when large > group activities are called for – a total of three times during the next > year – they can be done in one big group or in a couple smaller groups. > > Beyond the participants from patients/community representatives, the > exercise must also be conducted with 5-10 *PBRN Board/advisory board > members* or other community clinicians in each site. > > When thinking about prompts, we will want to choose ones *that can be > easily adapted* to work for both patient & clinician audiences. > > Finally, we want to try and conduct this exercise with a sample of 5-10 *academic > researchers* at each site. Obviously, the phrasing of any selected > prompt would need to be flipped so that it still focuses on community > (patient or clinician) engagement in primary healthcare research. Even > though this step was not outlined in the proposal, we believe that having > this data will not add much work and can help us to understand research > perspectives when developing content for the toolkits. > > *Remember:** Education levels will range from very low to quite high, and > there will be respondents who are strictly Spanish-speaking. Obviously the > prompt will have to be translated, but it’s also important to realize that > varying cultural perspectives will be represented.* > > *To start our brainstorming about possible prompts, some are listed > below. Without critiquing any of those that have been listed, please add > your own suggestions and feel free to build upon the ones that are already > listed. Please take a few minutes to do this as soon as possible after you > receive this message and Reply to All. Then feel free to build upon > whatever has been added as new thoughts come to mind. * > > In addition to CRT members, content experts (Oakley, Wichersham, Hamm) > are encouraged to join in. During the first CRT call with Ken Oakley next > week, we will parse the “prompts” list down and later decide upon the one > we will use after a dialogue with some of our patient/community reps in > early February. > > *BRAINSTORMED LIST OF POSSIBLE PROMPTS:* > > · The role for patients [community clinicians], in health care > research is … > > · When I think of health research that matters to me in my > day-to-day life, I think of … > > · A lot of people are trying to answer questions and solve > problems so that people stay healthy and so that everyday [primary] health > care works better. If someone [a clinician] like me wanted to provide a > patient [community] perspective on ways those people [researchers] could do > a better job providing answers to the questions I have, I’d want to … > > · The best way to get patients [clinicians] and communities > involved in research about making primary health care work better for me > and people [clinicians] like me is > > · The best way to learn about what matters to people > [clinicians] who use [deliver, provide] primary healthcare is to … > > > > > > *Barbara L. Norton, DrPH* > Assistant Professor of Research *//* Research Division > Department of Family and Preventive Medicine *//* University of Oklahoma > Health Sciences Center > > 900 NE 10th St Room 2209 *//* Oklahoma City OK 73104 > *p * 405.271.3733 | *c * 405.308.0801 | *f * 405.271.2784 | *e * > [log in to unmask] > > > -- Lyndee Knox LA Net - A Community Health Research and Resource Network www.lanetpbrn.net and www.projectechola.org Phone: 562-434-2000