Communication for the Heartland Regional Genetics Group


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"Nale, Donna" <[log in to unmask]>
Reply To:
Communication for the Heartland Regional Genetics Group <[log in to unmask]>
Wed, 27 Feb 2008 11:09:48 -0600
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Answers below.

Donna Nale
Service Coordinator
Southern Missouri Telehealth Genetics
University Missouri Health Care

-----Original Message-----
From: Communication for the Heartland Regional Genetics Group on behalf of Jayne Brown
Sent: Tue 2/26/2008 7:10 PM
To: [log in to unmask]
I am working on a research paper regarding play therapy or therapeutic groups
for children who have been diagnosed with a genetic disorder.  I am curious if
there are such groups throughout the Heartland consortium. Please take some
time to answer these questions and return them to Jayne Brown at
[log in to unmask]

ATTENTION: This survey has NOT been presented for IRB approval and through
emailing this document your identity is not anonymous. If you would like the
results of this survey, please notify Jayne Brown at the above email address.
Thank you for your time.

Play Therapy is a form of psychotherapy used with children to help them express
or act out their experiences, feelings, and problems by playing with dolls,
toys, and other play material, under the guidance or observation of a
therapist. http://medical-dictionary.thefreedictionary.com

1.Are you familiar with any play therapy groups addressing genetic disorders in
children in your area? N/Y  (NO)
2.If so please identify area. __________________________________________________

3.Are you familiar with theraplay? NO / YES  (NO)
Theraplay is a therapeutic approach that uses elements of play therapy with the
intention of helping parents and children build better attachment relationships
through attachment-based play.

4.If you are in genetic healthcare, does your organization provide therapy, or
psychosocial services for clients who have a genetic diagnosis? NO / YES  (NO)

5.If you provide psychosocial services, who provides services; please describe:

6.Does your genetic healthcare organization employ social workers? NO / YES  (NO)

7.Do you see a need for social workers within the genetic healthcare
organization? NO / YES  (YES)

a.If so,please describe how a social worker can benefit your organization:
__Social worker would enhance Genetic Services and provide more indepth quality of care.

8.When a child has been diagnosed with a genetic disorder, please describe how
your organization addressed the psychosocial aspects of the child, or the
family, coping with the
diagnosis: The Geneticist or counselor encourages families to seek help through other organizations or gives advise on how to help with issues that arise specific to the patient.

9.Do you recognize a need for support groups within genetic healthcare? NO / YES (YES!)

10.Would you consider using telemedicine for implementing support groups NO /

11.Now that you have thought about addressing the psychosocial aspects of a
client/patient who has a genetic diagnosis, would you consider play therapy, or
theraplay, an important component to the care of your patient? NO / YES (YES)
Why? Any activity that will help a child/families get involved to help improve their childs abilities and improve their quality of life is important._

I have attached to document in WORD format as well.

Thank you for your time,
Jayne Brown, LSW