Communication for the Heartland Regional Genetics Group


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"Williamson, Lori L. (HSC)" <[log in to unmask]>
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Communication for the Heartland Regional Genetics Group <[log in to unmask]>
Fri, 10 Apr 2009 15:32:27 -0500
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Hope you can sign on!


From: Shuger, Jill (HRSA) [mailto:[log in to unmask]]
Sent: Friday, April 10, 2009 2:42 PM
To: 'Berry, Sue'; 'Figge, Jim'; 'Hinman, Alan'; 'Kaye, Celia'; 'Kemper, Alex'; Kus, Christopher A.; 'Levy-Fisch, Jill'; 'Lorey, Fred'; Puryear, Michele (HRSA); Shuger, Jill (HRSA); 'Therrell, Brad'; 'Alisha Keehn'; 'Amy Schwartz'; 'Anne Comeau'; 'Camille Miller'; 'Cynthia Cameron'; 'David Ledbetter'; 'Gloria Weissman'; 'Hans Anderssen'; Harris, Alaina (HRSA); 'Janice Bach'; 'John Moeschler'; Mulvihill, John J. (HSC); 'Joyce Hooker'; 'Judith Benkendorf'; 'Katharine Harris'; 'Kenneth Pass'; 'Kerry Silvey'; Kyler, Penny (HRSA); Williamson, Lori L. (HSC); 'Louis Bartoshesky'; Mann, Marie (HRSA); 'Marzia Pasquali'; 'Michael Watson'; 'Piero Rinaldo'; 'Rani Singh'; 'Roger Eaton'; 'Sylvia Au'
Subject: ACHDNC-18th Meeting Webcast, 5/12/09, 1:00-5:00 PM EDT

Eighteenth Meeting of the Secretary's Advisory Committee
on Heritable Disorders in Newborns and Children (ACHDNC)
May 12, 2009, 1:00 p.m. - 5:00 p.m. (EDT)

AGENDA:  The meeting will include (1) a presentation of the external review workgroup's preliminary report on the nomination of Krabbe disease to the uniform newborn screening panel, (2) a discussion of the Committee's draft issue brief for recommending policies to states for the use and storage of newborn screening Residual Blood Spots, and (3) a discussion of the impact of the present economy on State newborn screening program infrastructures.  Agenda items are subject to change as priorities dictate.  You can also locate the Agenda, presentations, and meeting materials at the home page of the meeting website at http://events.SignUp4.com/achdnc0509<http://events.signup4.com/achdnc0509>.


 1.  The public can join the meeting via webcast by logging onto http://altarum.na3.acrobat.com/achdnc/; next select "enter as a guest," type in your full name, and click "enter room."
 2.  For audio, call the toll free number: 1-877-551-8166.  When prompted, say the password - "HRSA Genetics".   Participants should call no            later than 12:50 p.m. EDT in order for the logistics to be established.

If there are technical problems gaining access to the website, please contact Alison Gary, Web Meetings Coordinator, Altarum Institute, telephone (202) 828-5100, or e-mail [log in to unmask]<mailto:[log in to unmask]>.

MEETING DOCUMENTS:  Materials for the meeting will be posted on the website, http://events.SignUp4.com/achdnc0509<http://events.signup4.com/achdnc0509>.