Communication for the Heartland Regional Genetics Group


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"Troxell, Robin M." <[log in to unmask]>
Wed, 30 Apr 2008 16:09:25 -0500
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Colleagues - Sorry if some of you receive this multiple times.  I am working with a family whose 22 week fetus has multiple anomalies including heart defect, cystic/absent kidney, severe oligohydramnios, cystic hygroma.  Amnio is pending, and family is considering termination.  Mother is very interested in donating the fetus for some kind of research but would prefer to donate the entire body.  I have calls into the NICHD brain and tissue bank but I think they do not accept the whole baby.  Also called Greenwood Genetics as suggested by an old listserve post, but they do more clinical autopsy than research.  Donate Organ America didn't feel that organs would be useful though possibly tissue depending on the sample condition.  I think cord blood donation is out at this gestation age.  Any other suggestions are appreciated.  

Robin M. Troxell, MS, CGC
Genetic Counselor
University of Missouri Department of Child Health
Mercy St. John's Hospital (Springfield, MO)
(p) 417-820-9839
(f) 417-820-3720
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