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Communication for the Heartland Regional Genetics Group

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Communication for the Heartland Regional Genetics Group <[log in to unmask]>
Date:
Wed, 6 Jun 2007 10:16:57 -0500
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Communication for the Heartland Regional Genetics Group <[log in to unmask]>
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"Troxell, Robin M." <[log in to unmask]>
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Hello - 
I received a call today from the chaplin in a separate hospital.  They have a woman whose 22 week fetus has some type of skeletal dysplasia - the info he has says no arms or legs, so she is getting induced - today of course.  "Someone" suggested that the family could donate the body to research and they really want to do that - of course now nobody knows where to send it.  Does anyone have any suggestions - the only one I could think of was the Maryland Brain and Tissue bank but I'm not sure if its appropriate.  Since they dont' have a diagnosis they are planning xrays, pictures and skin bx for chromosomes after delivery.  Any help is appreciated!
 
Robin
************************************
Robin M. Troxell, MS, CGC
Genetic Counselor
University of Missouri Department of Child Health
Mercy St. John's Hospital (Springfield, MO)
(p) 417-820-9839
(f) 417-820-3720
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"This year, or this month, or, more likely, this very day, we have failed to practise ourselves the kind of behaviour we expect from other people."  -- C.S. Lewis --

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