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Subject:	FW: Request for advocacy materials
From:	"Whitehead, Shona R. (HSC)" <[log in to unmask]>
Reply To:	Communication for the Heartland Regional Genetics Group <[log in to unmask]>
Date:	Thu, 31 Jan 2013 12:31:35 -0600
Content-Type:	multipart/alternative
Parts/Attachments:	text/plain (2223 bytes) , text/html (6 kB)

Please distribute to other Advocacy Organizations in your state.

From: James O'Leary [mailto:[log in to unmask]]
Sent: Thursday, January 31, 2013 9:00 AM
Subject: Request for advocacy materials

I am writing to ask for your help in providing information that will support individuals who wish to act as advocates on behalf of themselves, their families, or others living with the same condition.

Genetic Alliance is partnering with Parent to Parent USA and Family Voices to collect tools and resources that will help users build leadership, communications, outreach, and advocacy skills. Similar to www.wikiadvocacy.org<https://urldefense.proofpoint.com/v1/url?u=http://listserv.galists.org/t/689041/428560/2513/0/&k=7DHVT22D9IhC0F3WohFMBA%3D%3D%0A&r=QD0MALm7li4xmB3DnzvTKy2CVOWeUGJzsljAyiiNZhA%3D%0A&m=i5JPL0bMTgGsKhQIOvRvdhMSRMKchESWbvqIgJ92vOQ%3D%0A&s=b23dfaf7a28892d9a7c931308e92f8cb0bdc5c022c54bcb733f8ed487a49f974> (which is largely an organizationally-focused resource), these tools and resources will either be downloadable from the Genetic Alliance web site, or available as a link to your web site.  If we use a resource you provide, or link to it on your web site, we would be happy to credit your organization with creating the tool or material.

Please send a separate email to [log in to unmask]<mailto:[log in to unmask]> (after compilation, I will send out the toolkit to the whole list) to send me audio, webinar, and electronic text files about leadership, communications, outreach, and advocacy skills - or links to these materials - by Friday, February 8th.

Since Parent to Parent USA, Family Voices, and the Genetics Alliance are partnering on this effort, please excuse us if you receive this email more than once. We are each sending it to our network to make sure the broadest number of individuals and organizations is able to participate.

Thank you for your support.

Sincerely,
James

--
James C. O'Leary | Chief Innovation Officer
Genetic Alliance
4301 Conn. Ave., N.W., Ste. 404
Washington, D.C. 20008
D: 202.966.5557 x206 | F: 202.966.8553
[log in to unmask]<mailto:[log in to unmask]>
www.geneticalliance.org<http://www.geneticalliance.org>

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