Communication for the Heartland Regional Genetics Group


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"Whitehead, Shona R. (HSC)" <[log in to unmask]>
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Communication for the Heartland Regional Genetics Group <[log in to unmask]>
Fri, 2 Mar 2012 09:05:15 -0600
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-----Original Message-----
From: Heather Smith [mailto:[log in to unmask]]
Sent: Friday, March 02, 2012 7:26 AM
Subject: FW: HLI Seminar Series Broadcast for Mar 20th Seminar on Newborn Screening

Heather Smith, MPH

Health Planning Consultant

Project Coordinator, Systems in Sync

Kansas Department of Health and Environment Children and Youth with Special Health Care Needs

1000 SW Jackson, Suite 220

Topeka, KS 66612-1274

Direct: 785-296-4747 / Fax: 785-296-8616 [log in to unmask]<mailto:[log in to unmask]>

**Note name change from Heather Moore to Heather Smith**

www.kdheks.gov/cyshcn<http://www.kdheks.gov/cyshcn>   ~   www.systemsinsync.org<http://www.systemsinsync.org>   ~   www.kansasresourceguide.org<http://www.kansasresourceguide.org>

-----Original Message-----

From: [log in to unmask]<mailto:[log in to unmask]> [mailto:[log in to unmask]]<mailto:[mailto:[log in to unmask]]> On Behalf Of Honberg, Lynda (HRSA)

Sent: Thursday, March 01, 2012 4:06 PM

Subject: FW: HLI Seminar Series Broadcast for Mar 20th Seminar on Newborn Screening

See below regarding a webinar aimed at educating primary care providers about decision support tools that can assist with NBS follow-up.

HRSA Learning Institute

Seminar Series Presents...

"ACTions Matter: A candid conversation about newborn screening results and resources that primary care providers can employ in the clinical management of individuals identified with genetic conditions through newborn screening."


Barry H. Thompson, MD

Medical Director

American College of Medical Genetics

Alisha S. Keehn, MPA

Project Manager, NCC

American College of Medical Genetics

Eve Kimball, MD


Founder and Managing Partner

All About Children Pediatric Partners

Thomas Sullivan, MD


President and Co-Founder,

ALL Pediatrics

Tracy L. Trotter, MD


San Ramon Valley Primary Care

Date:  March 20, 2012

Time:  2:00pm - 4:00pm EST

Location:  Day of event:  https://services.choruscall.com/links/hrsa110310.html

RSVP:  https://sharepoint.hrsa.gov/teams/oa/hli/Lists/May%202011%20RSVP%20List/NewForm.aspx

Event Description:

In 2006, following the publication of the Recommended Uniform Newborn Screening Panel, the American College of Medical Genetics (ACMG), through its HRSA-funded National Coordinating Center for the Regional Genetic and Newborn Screening Services Collaboratives (NCC), developed ACTion Sheets (ACT Sheets) as clinical decision support tools for the primary care provider.  ACT sheets contain basic information about genetic disorders and outline a plan of appropriate action for the primary care provider to take when acute and life threatening disorders are encountered in the immediate newborn period.  Subsequently, new ACT Sheets have been developed to include additional newborn screening identified disorders, transition to adult care, adult-onset, and carrier conditions.  ACT Sheets dissemination and widespread adoption remains a central goal of the NCC.  Ms. Keehn and Dr. Thompson will engage Drs. Kimball, Sullivan, and Trotter in a robust conversation about ACT Sheets and the newborn screening system from their perspectives as primary care providers.  The discussion is intended to increase the awareness about and encourage the use of ACT Sheets.

Please be sure to join us for this informative and engaging session!

Please visit the HRSA Learning Institute's Seminar Series SharePoint site: (https://sharepoint.hrsa.gov/teams/oa/hli/default.aspx) to register for this session and view the presenter bios.

Brought to you by:

Maternal and Child Health Bureau AND HRSA Learning Institute


Questions? Email [log in to unmask]<mailto:[log in to unmask]<mailto:[log in to unmask]:[log in to unmask]>> or call