Communication for the Heartland Regional Genetics Group


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"Johnson, Holly A" <[log in to unmask]>
Fri, 13 Sep 2013 14:01:33 +0000
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Department of Imaging & Radiation Sciences*
UAMS Slot 563, 4301 W. Markham St.
Little Rock, AR 72205
(501) 686-5948 phone
(501) 526-7975 fax
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Divisions of Radiologic Imaging Sciences, Nuclear Medicine Imaging Sciences, Diagnostic Medical Sonography & Medical Dosimetry

From: Phenylketonuria (PKU) Support Group [mailto:[log in to unmask]] On Behalf Of Nicole Polkowski
Sent: Friday, September 13, 2013 8:51 AM
To: [log in to unmask]
Subject: FW: Help us spread the word: PKU Congressional Briefing

The National PKU Alliance, in partnership with the Neurosciences Caucus and Rare Disease Caucus, will be holding a Congressional Briefing on Thursday, Sept. 19 on PKU and Medical Foods.  We need your help to spread the word!  Please call your House Representative today and ask them to send their Health Legislative Assistant to the briefing.  Here is what you need to do:

1.        Look up your House Representative at https://urldefense.proofpoint.com/v1/url?u=http://www.npkua.org/index.php/your-legislators&k=7DHVT22D9IhC0F3WohFMBA%3D%3D%0A&r=rX%2BpwtxS62RFz%2BMe%2BGygIuxlYqsdJqSFMkXPQTg4Occ%3D%0A&m=W%2FA7R3gLztqWz7LdecnE%2FdV5qmlqmaRaz4CD4Ir1a9k%3D%0A&s=78d4c9668982d4e4782c75b5f185d092cf1c62be5be336e0fcec7f3036c57cca

2.       Call their Washington, DC office

3.       Tell the intern that answers the phone your name and address.  Tell them your relation to PKU and that you want your Representative to send their Health LA to attend a briefing on PKU and medical foods next Thursday.  Ask them where you can email the invitation with the details of the briefing.

4.       Download the Briefing Invitation at https://urldefense.proofpoint.com/v1/url?u=http://www.npkua.org/images/congressional_briefing.pdf&k=7DHVT22D9IhC0F3WohFMBA%3D%3D%0A&r=rX%2BpwtxS62RFz%2BMe%2BGygIuxlYqsdJqSFMkXPQTg4Occ%3D%0A&m=W%2FA7R3gLztqWz7LdecnE%2FdV5qmlqmaRaz4CD4Ir1a9k%3D%0A&s=3320277a1717ba77e66948af00452b48441bd57e3e3a18789597919c308b8d35

5.       Send to your Representative's email address with a short note asking them to attend

Please take 5 minutes today and help us spread the word to ensure our PKU Voices are heard on Capitol Hill next Thursday!

Thank you!

Nicole Polkowski
Project Assistant
National PKU Alliance
PO Box 501
Tomahawk, WI 54487
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