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Communication for the Heartland Regional Genetics Group

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Jayne Brown <[log in to unmask]>
Wed, 27 Feb 2008 11:14:01 -0600
text/plain (109 lines)
Thank you Donna for taking your time in responding to my questions. Jayne


Nale, Donna wrote:
> Answers below.
>
> Donna Nale
> Service Coordinator
> Southern Missouri Telehealth Genetics
> University Missouri Health Care
> 417-277-5619
>
>
>
> -----Original Message-----
> From: Communication for the Heartland Regional Genetics Group on behalf of Jayne Brown
> Sent: Tue 2/26/2008 7:10 PM
> To: [log in to unmask]
> Subject: 
>  
> I am working on a research paper regarding play therapy or therapeutic groups
> for children who have been diagnosed with a genetic disorder.  I am curious if
> there are such groups throughout the Heartland consortium. Please take some
> time to answer these questions and return them to Jayne Brown at
> [log in to unmask]
>
> ATTENTION: This survey has NOT been presented for IRB approval and through
> emailing this document your identity is not anonymous. If you would like the
> results of this survey, please notify Jayne Brown at the above email address.
> Thank you for your time.
>
> Play Therapy is a form of psychotherapy used with children to help them express
> or act out their experiences, feelings, and problems by playing with dolls,
> toys, and other play material, under the guidance or observation of a
> therapist. http://medical-dictionary.thefreedictionary.com
>
> 1.Are you familiar with any play therapy groups addressing genetic disorders in
> children in your area? N/Y  (NO)
> 2.If so please identify area. __________________________________________________
> ________________________________________________________________________________
>
> 3.Are you familiar with theraplay? NO / YES  (NO)
> Theraplay is a therapeutic approach that uses elements of play therapy with the
> intention of helping parents and children build better attachment relationships
> through attachment-based play.
>
> 4.If you are in genetic healthcare, does your organization provide therapy, or
> psychosocial services for clients who have a genetic diagnosis? NO / YES  (NO)
>
> 5.If you provide psychosocial services, who provides services; please describe:
> ________________________________________________________________________________________________________________________________________________________________________________________________________________________________________________
>
> 6.Does your genetic healthcare organization employ social workers? NO / YES  (NO)
>
> 7.Do you see a need for social workers within the genetic healthcare
> organization? NO / YES  (YES)
>
> a.If so,please describe how a social worker can benefit your organization:
> __Social worker would enhance Genetic Services and provide more indepth quality of care.
>
> 8.When a child has been diagnosed with a genetic disorder, please describe how
> your organization addressed the psychosocial aspects of the child, or the
> family, coping with the
> diagnosis: The Geneticist or counselor encourages families to seek help through other organizations or gives advise on how to help with issues that arise specific to the patient.
> ________________________________________________________________________________
>
> 9.Do you recognize a need for support groups within genetic healthcare? NO / YES (YES!)
>
> 10.Would you consider using telemedicine for implementing support groups NO /
> YES (YES)
>
> 11.Now that you have thought about addressing the psychosocial aspects of a
> client/patient who has a genetic diagnosis, would you consider play therapy, or
> theraplay, an important component to the care of your patient? NO / YES (YES)
> Why? Any activity that will help a child/families get involved to help improve their childs abilities and improve their quality of life is important._
> ________________________________________________________________________________________________________________________________________________________________
>
> I have attached to document in WORD format as well.
>
> Thank you for your time,
> Jayne Brown, LSW
>   


-- 
*Jayne Brown, LSW*
Human Service Information Coordinator
Division of Medical Genetics
UND School of Medicine & Health Sciences Room 5910
501 N. Columbia Road Stop 9037
Grand Forks, ND 58202-9037
(701) 777-4276
www.medicine.nodak.edu/genetics

"Be kinder than necessary because everyone you meet is fighting some kind of battle." 

**************************************************
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