PDQNet Concept Mapping Launch & Development of a “Prompt”
1/20/2016


We are about to launch the PDQNet Year 2 concept mapping exercise.  To begin the first step – a brainstorming process that lasts for about an hour in a group setting (or can be done on-line…probably for much less time), we need to start it with a “prompt statement.”  This prompt statement can constitute a single unfinished sentence or can be introduced by a series of sentences followed by an unfinished sentence or question.

Keep in mind, we are conducting this exercise, and conducting this methods study, to develop recommendations to advise PCORI about good practices for empowering patients and community groups to become active participants in identifying and prioritizing the agenda of primary healthcare research.


Audiences:
We’ve thus far being thinking about prompts appropriate for members of patient/community organizations, intended to be as many as 25-30 people at each of our 3 PDQNet sites.  To get to the total sample of 25-30, this exercise can be done just with the PDQNet patient/community partner, or it can be done with the community partner plus participants from other research-engaged organizations.  The thing to remember is that the more you add groups, the more the work multiplies.  One other thing: when large group activities are called for – a total of three times during the next year – they can be done in one big group or in a couple smaller groups.

Beyond the participants from patients/community representatives, the exercise must also be conducted with 5-10 PBRN Board/advisory board members or other community clinicians in each site.

When thinking about prompts, we will want to choose ones that can be easily adapted to work for both patient & clinician audiences.

Finally, we want to try and conduct this exercise with a sample of 5-10 academic researchers at each site.  Obviously, the phrasing of any selected prompt would need to be flipped so that it still focuses on community (patient or clinician) engagement in primary healthcare research.  Even though this step was not outlined in the proposal, we believe that having this data will not add much work and can help us to understand research perspectives when developing content for the toolkits.

Remember: Education levels will range from very low to quite high, and there will be respondents who are strictly Spanish-speaking. Obviously the prompt will have to be translated, but it’s also important to realize that varying cultural perspectives will be represented.


To start our brainstorming about possible prompts, some are listed below.  Without critiquing any of those that have been listed, please add your own suggestions and feel free to build upon the ones that are already listed.  Please take a few minutes to do this as soon as possible after you receive this message and Reply to All.  Then feel free to build upon whatever has been added as new thoughts come to mind.

In addition to CRT members, content experts (Oakley, Wichersham, Hamm) are encouraged to join in. During the first CRT call with Ken Oakley next week, we will parse the “prompts” list down and later decide upon the one we will use after a dialogue with some of our patient/community reps in early February.

BRAINSTORMED LIST OF POSSIBLE PROMPTS:


·         The role for patients [community clinicians], in health care research is …


·         When I think of health research that matters to me in my day-to-day life, I think of …



·         A lot of people are trying to answer questions and solve problems so that people stay healthy and so that everyday [primary] health care works better.  If someone [a clinician] like me wanted to provide a patient [community] perspective on ways those people [researchers] could do a better job providing answers to the questions I have, I’d want to …


·         The best way to get patients [clinicians] and communities involved in research about making primary health care work better for me and people [clinicians] like me is


·         The best way to learn about what matters to people [clinicians] who use [deliver, provide] primary healthcare is to …



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Barbara L. Norton, DrPH
Assistant Professor of Research // Research Division
Department of Family and Preventive Medicine // University of Oklahoma Health Sciences Center
900 NE 10th St  Room 2209 // Oklahoma City OK 73104
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